GeneThink

Emory Genetics, GeneThink, LLC., the National Organization for Rare Disorders (NORD), and the Genetic Alliance are developing a webpage/application called GeneThink that does a better job of answering questions about genetic conditions than Google.  In order to make this website useful, we're asking you to tell us more about the questions you want answered about the genetic condition that affects you or your family member(s).  This is not a research study, only a way to gather your opinions and thoughts for GeneThink.  Please use the words, spelling, and punctuation that comes naturally to you.  Do not edit or spell check.  We want to see how you might ask questions in your own words.   Your contact information from this survey will not be sold or used for any purposes other than those stated here and in the questions you answer.  If you have any questions about this survey or GeneThink, feel free to email Dawn Laney, MS at dawn.laney@emory.edu.  Thank you for participating in our survey. Your feedback is important.