Discussion Framework for Clinical Trial Data Sharing: Guiding Principles, Elements, and Activities
This survey is to help garner feedback for the Institute of Medicine’s Clinical Trial Data Sharing Committee’s Discussion Framework for Clinical Trial Data Sharing: Guiding Principles, Elements, and Activities. The committee welcomes comments from interested parties to help ensure that major concerns and areas are not overlooked, and particularly invites comments on the difficult or complex topics outlined below. Feel free to answer one or more – even answering one is very useful to the committee.
Genetic Alliance will gather responses to this survey and give it to the committee. Or, comments may be submitted to the committee at either of two forthcoming public workshops, or via the committee’s project website, http://www8.nationalacademies.org/cp/projectview.aspx?key=49578. The specific topics for public feedback are below.