Assessment of the need for a respite care facility for suffers of ME/CFS & Fibromyalgia.

The Rest Assured Respite Charitable Trust is a recently formed organisation whose vision is to provide a respite care facility for, but not limited to, the suffers of ME/CFS and Fibromyalgia.
The facility will provide specialized short and longer term residential care for suffers allowing them access to a place of sanctuary & rest with staff who understand the true nature of the illness. The trust will strive to provide professional, non-judgemental care in an environment best suited to bring about improvement to the lives of suffers, their carers & families.

We need your help to fulfill this vision.
By participating in this survey you will be providing:
1. a valuable resource that can be used to determine/validate the need for a respite facility for ME/CFS & Fibromyalgia sufferers
2. information that will be useful when determining the specific needs to be catered for at the facility.
To get an idea of what is proposed please go to http://restassuredrespitetrust.org/  for more information. We are trying to determine if the need exists, before going further.

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* 1. Have you been diagnosed by a medical professional with any of the following. Tick all that apply

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* 2. How many years have you had ME/CFS or Fibromyalgia? Tick one

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* 3. How would you best rate and describe the severity of your illness?
0% being totally bedbound/severely disabled - to 100% which is being completely well? Tick one (this link will give you an ability scale which will help you determine your level more accurately ME CFS Ability_Scale)

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* 4. What are your most common symptoms? Tick all that apply

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* 5. What help or care do you receive at the moment? Which region do you live in? Tick whichever applies

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* 6. Do you need or would you use respite care, a place to go for time out run by people who understand your illness?
What age group do you fit into?
Tick one answer about respite care and one answer for age. (Two answers in total).

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* 7. If this facility was sited in Thames equidistant from Auckland, Tauranga & Hamilton: near sea, airport, bus route & hospital would you be able to access it? Tick one

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* 8. If you did use respite could you afford to pay part of the cost? Tick one

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* 9. If you did use respite what length of stay would you need?

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* 10. What are the things that would be important to you, or that would make a place of respite something that would benefit you? Tick all that apply

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