About this survey

What is the purpose of this survey?

The purpose of this survey is to receive input from a broad range of stakeholder on the WASH focused research questions that are critical to achieving the Neglected Tropical Disease (NTD) elimination and control targets identified in the World Health Organization's (WHO) Road Map for NTDs 2021-2030. 

This survey is part of a broader project being undertaken by the NTD NGO Network’s (NNN) WASH Working Group, at the request of WHO, to identify and share research priorities relating to Water, Sanitation and Hygiene (WASH) and Neglected Tropical Diseases (NTD). This survey is one input into this project. Other components include a literature review and a series of activities to categorise, assess and rank research questions. An advisory group has been established to steer this project. If you would like further details on this work, please contact the project lead: Dr Sarity Dodson (sdodson@hollows.org). 

The Integrated NTD and WASH Research and Innovation Agenda, will form a component of a more comprehensive research and development plan for NTDs being developed by WHO. The agenda is being developed to encourage coordination of research activities, and the effective targeting of research investments.
Who is being invited to participate?
You are being asked to take part in this survey because you are part of an organization or program that focuses on issues related to NTDs and/or WASH.

What am I being asked to do?
You are invited to take part in an online survey to inform the development of an Integrated NTD and WASH Research and Innovation Agenda.

The survey is voluntary, and you can decide whether to take part or not. There are no negative consequences if you don’t want to participate and if you start the survey, you can change your mind and stop at any time.

If you decide to participate you will be asked to identify and explain one or more research questions that you believe need to be answered to help achieve NTD elimination goals. You will also be asked some general questions to describe yourself and the type of work that you do. You will not be asked to provide your name or any other identifying information. 

Will I receive any benefits for participating?
You will not be compensated for taking part in the survey - there are no direct benefits to you. There are also no financial costs to you for taking part in the survey.

How long will it take?
We anticipate the total amount of time to complete the survey is between 5 and 20 minutes, depending on the number of ideas you have. 
About the data you share

Who can see my data?

The research team will have access to the survey responses so they can analyze the data and complete the study.

The team will share summarized findings in publications or presentations. Results will be shared in aggregate and summarized form, with no individual results or identifiers.

How long will my data be kept?
The data we collect through this survey will be kept for no more than six months or until successful publication of The Agenda, whichever is sooner.

Where will my data be stored?
The data will be transferred from Survey Monkey to a password protected file that will be stored on The Fred Hollows Foundation server in Australia. 

How will you use my data?
The information you provide will be used to develop a comprehensive list of research questions of importance to the NTD and WASH communities. Your data won’t be used or shared with others for future research studies. Only members of the research team will have access to the raw data. What you tell us will only be reported in aggregate form in reports and presentations, with no personal identifiers.

How will you protect my data?
We will do everything possible to protect the information that you share with us. We will not ask you for any personal information such as your name, email address, where you work or other personal information. The research team will check and remove any identifying data from the database before it is analyzed. The data will be downloaded on a daily basis and transferred to secure password protected file on a secure server for analysis.

Are there any risks associated with sharing my data online?
Anytime you share information online there are risks. A secure system will be used to collect this data, but we cannot completely eliminate this risk. There is a chance your data could be seen by someone who shouldn’t have access to it. We will mitigate this risk by transferring data from the online survey site as soon as the survey is closed.


Need more information?

For any questions about the research project contact project lead: Dr Sarity Dodson (sdodson@hollows.org).

For any questions about your rights as a research participant, complaints, or problems contact: Kuor Kumoji (KuorKumoji@jhu.edu) or the Johns Hopkins University IRB at (JHSPH.irboffice@jhu.edu).
My Agreement to Participate

Your participation is completely voluntary, and you can withdraw at any time.

If you agree with the information presented above and you would like to participate in this online survey, proceed by clicking the button below to provide your voluntary consent to participate or to decline to participate.

Question Title

* 1. Do you wish to participate in this online survey?

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