Newborn Blood Spot Screening Program Stakeholder Feedback Survey

Introduction

The Colorado Newborn Blood Spot Screening Program provides screening for metabolic disorders for all newborns in the State of Colorado. The program is seeking feedback from stakeholders to assess needs for increased communication and training.

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* 1. What is your role in the Colorado Newborn Blood Spot Screening Program?

Hospital Staff

Birthing Facility Staff

Pediatrician

Clinical Specialist

Midwife

Parent

Other (please specify)

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* 2. Where are you located?

Northern Front Range

Denver Metro

Southern Front Range

Western Slope

Eastern Plains

Other (please specify)

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* 3. What volume and type of specimens are submitted to the Colorado Department of Public Health and Environment (CDPHE) Laboratory annually by your facility (select all that apply)?

My facility submits a large volume of first screens (1000+)

My facility submits a large volume of second screens (400+)

My facility submits a moderate volume of first screens (100-999)

My facility submits a moderate volume of second screens (50-399)

My facility submits a small volume of first screens (<100)

My facility submits a small volume of second screens (<50)

Other (please specify)

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* 4. Are you aware of the Colorado Board of Health Rules (and procedures) governing newborn blood spot screening?

Yes, I am aware of and follow the Colorado Board of Health Rules for newborn blood spot screening

I am aware of the rules but not certain how they are implemented at my facility

I am not familiar with the Colorado Board of Health Rules

Other (please specify)

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* 5. Do you feel you have sufficient training to collect blood spot samples for submission to the CDPHE Laboratory?

Yes, I have received training from my facility and am confident in my blood spot collection skills

Yes, I have received training from CDPHE and am confident in my blood spot collection skills

No, my blood spot specimen cards are often rejected by the State Public Health Laboratory as “Unsatisfactory” samples and I know what I need to change in order to collect a satisfactory sample.

No, my blood spot specimen cards are often rejected by the State Public Health Laboratory as “Unsatisfactory” samples and I do not know what I need to change in order to collect a satisfactory sample

No, I have received some training but would like additional training to ensure proper collection

No, I have not received any training on proper blood spot specimen collection procedures

Not applicable (I am not responsible for sample collection)

Other (please specify)

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* 6. Would your facility benefit from any of the following types of training for specimen collection and submission (select all that apply)? :

In-person training

Written instructions

Visual instructions or diagrams

On-demand webinars or videos

Other (please specify)

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* 7. How do you prefer to hear about updates to the Newborn blood spot screening program?

Newsletter, electronic

Newsletter, paper

Quarterly in-person stakeholder meeting

Website

Email blast (such as HAN)

Other (please specify)

Newborn Blood Spot Screening Program Stakeholder Feedback Survey

Introduction

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* 1. What is your role in the Colorado Newborn Blood Spot Screening Program?

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* 2. Where are you located?

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* 3. What volume and type of specimens are submitted to the Colorado Department of Public Health and Environment (CDPHE) Laboratory annually by your facility (select all that apply)?

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* 4. Are you aware of the Colorado Board of Health Rules (and procedures) governing newborn blood spot screening?

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* 5. Do you feel you have sufficient training to collect blood spot samples for submission to the CDPHE Laboratory?

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* 6. Would your facility benefit from any of the following types of training for specimen collection and submission (select all that apply)? :

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* 7. How do you prefer to hear about updates to the Newborn blood spot screening program?

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* 8. What do think works well for the NBS blood spot screening programs?

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* 9. What changes would you like to see made to the program?

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* 10. Please share any additional comments or concerns about the Newborn Blood Spot screening program: