COVID-19 Survey for the Adrenal Disease Community Question Title * 1. Please choose your state of residence from the drop-down. Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia (DC) Florida Georgia Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming Question Title * 2. Please check all that apply to you. I have primary adrenal insufficiency or am the caregiver for someone with it. I have secondary adrenal insufficiency or am the caregiver for someone with it. Other adrenal disease (please specify) Question Title * 3. Please select the age group of the individual with adrenal disease from the ranges shown below. Under 18 18-24 25-34 35-44 45-54 55-64 65+ Question Title * 4. Have you experienced any challenges obtaining medication for your adrenal disease? Yes No Question Title * 5. If yes, what was the challenge to get the medication? I am unable to or afraid to travel to the pharmacy and my pharmacy does not deliver. I am unable to reach my physician to refill my prescription. Pharmacy is unable to fill do to a shortage or backorder. My insurance won't let me fill more than the standard 30-day or 90 day supply. I am unable to afford the medication due to a loss of income as a result of COVID-19. Question Title * 6. If your pharmacy indicated that your medication was not available, please check which drug you could not obtain. Greenstone Hydrocortisone 5 mg Greenstone Hydrocortisone 10 mg Greenstone Hydrocortisone 20 mg Pfizer Cortef 5 mg Pfizer Cortef 10 mg Pfizer Cortef 20 mg Vensun Hydrocortisone 5 mg Vensun Hydrocortisone 10 mg Vensun Hydrocortisone 20 mg Amneal Hydrocortisone 5mg Amneal Hydrocortisone 10 mg Amneal Hydrocortisone 20 mg Fludrocortisone (any) Other (please specify) Question Title * 7. If your pharmacy replaced your usual hydrocortisone brand, what did they replace it with? Question Title * 8. If your usual brand of hydrocortisone was replaced, how is it working for you? The replacement is working fine. The replacement is not working as well as my prior brand. I was able to obtain my usual brand so have not had an issue. If it is not working as well as your prior brand, please describe the issue. Question Title * 9. Are you concerned with future medication shortages? Yes No Question Title * 10. What steps are you taking to protect yourself from contracting COVID-19? (Check all that apply) Social distancing - 6 feet or more Washing hands often Avoiding touching eyes, nose and mouth Staying at home Cleaning and disinfecting frequently touched surfaces Covering coughs and sneezes Having a plan to prevent and treat symptoms of low cortisol Other (please specify) Question Title * 11. Have you had any symptoms of COVID-19? Yes No Question Title * 12. If yes, what were your symptoms? (Check all that apply) Fever Dry Cough Shortness of Breath Other (please specify) Question Title * 13. Please tell us if you have been tested for coronavirus (COVID-19). Yes No Question Title * 14. If tested for COVID-19, were you positive or negative? Positive Negative Please add your email address (or phone number) if you've tested positive. This will allow NADF to contact you for any questions regarding your experience with COVID-19. Question Title * 15. If you were tested positive, were you hospitalized? Yes No Question Title * 16. If you were hospitalized for COVID-19 did medical staff need to administer steroid dosing via IV hydrocortisone? Yes No Other (please specify) Question Title * 17. What else do you think we should know about your experience with COVID-19. Question Title * 18. Please tell us what sources you are using for information about COVID-19 and adrenal insufficiency. (Check all that apply) National Adrenal Disease Foundation (NADF) Website NADF Facebook Page NADF Twitter NADF Instagram NADF Support Groups Other (please specify) Question Title * 19. How helpful are the updates from the National Adrenal Disease Foundation (NADF) regarding COVID-19 for those with adrenal insufficiency. Extremely helpful Very helpful Somewhat helpful Not so helpful Not at all helpful Question Title * 20. What questions do you have about COVID-19 with respect to adrenal insufficiency that you would you like answered? Question Title * 21. We want you to stay safe during this pandemic. If there is anything else you'd want to share, please provide it here. Please note: this is an anonymous survey and will not have your contact information unless you provide it. Question Title * 22. Important Research on Adrenal Insufficiency and COVID-19: NADF Board Member, Elizabeth Regan MD, PhD is a principal investigator for The Adrenal Insufficiency (AI) Study, and is coordinating with several other patient cohort studies to collect detailed information about who gets sick, what symptoms do they experience and what are the long-term outcomes. If you are interested in participating in this more detailed study, please use this link. Thank you! https://redcap.njhealth.org/redcap/surveys/?s=P3DLE9D479 Completed. NADF thanks you for taking the time to complete this survey.