COVID-19 Survey for the Adrenal Disease Community

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* 1. Please choose your state of residence from the drop-down.

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* 2. Please check all that apply to you.

I have primary adrenal insufficiency or am the caregiver for someone with it.

I have secondary adrenal insufficiency or am the caregiver for someone with it.

Other adrenal disease (please specify)

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* 3. Please select the age group of the individual with adrenal disease from the ranges shown below.

Under 18

18-24

25-34

35-44

45-54

55-64

65+

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* 4. Have you experienced any challenges obtaining medication for your adrenal disease?

Yes

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* 5. If yes, what was the challenge to get the medication?

I am unable to or afraid to travel to the pharmacy and my pharmacy does not deliver.

I am unable to reach my physician to refill my prescription.

Pharmacy is unable to fill do to a shortage or backorder.

My insurance won't let me fill more than the standard 30-day or 90 day supply.

I am unable to afford the medication due to a loss of income as a result of COVID-19.

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* 6. If your pharmacy indicated that your medication was not available, please check which drug you could not obtain.

Greenstone Hydrocortisone 5 mg

Greenstone Hydrocortisone 10 mg

Greenstone Hydrocortisone 20 mg

Pfizer Cortef 5 mg

Pfizer Cortef 10 mg

Pfizer Cortef 20 mg

Vensun Hydrocortisone 5 mg

Vensun Hydrocortisone 10 mg

Vensun Hydrocortisone 20 mg

Amneal Hydrocortisone 5mg

Amneal Hydrocortisone 10 mg

Amneal Hydrocortisone 20 mg

Fludrocortisone (any)

Other (please specify)

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* 7. If your pharmacy replaced your usual hydrocortisone brand, what did they replace it with?

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* 8. If your usual brand of hydrocortisone was replaced, how is it working for you?

The replacement is working fine.

The replacement is not working as well as my prior brand.

I was able to obtain my usual brand so have not had an issue.

If it is not working as well as your prior brand, please describe the issue.

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* 9. Are you concerned with future medication shortages?

Yes

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* 10. What steps are you taking to protect yourself from contracting COVID-19? (Check all that apply)

Social distancing - 6 feet or more

Washing hands often

Avoiding touching eyes, nose and mouth

Staying at home

Cleaning and disinfecting frequently touched surfaces

Covering coughs and sneezes

Having a plan to prevent and treat symptoms of low cortisol

Other (please specify)

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* 11. Have you had any symptoms of COVID-19?

Yes

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* 12. If yes, what were your symptoms? (Check all that apply)

Fever

Dry Cough

Shortness of Breath

Other (please specify)

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* 13. Please tell us if you have been tested for coronavirus (COVID-19).

Yes

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* 14. If tested for COVID-19, were you positive or negative?

Positive

Negative

Please add your email address (or phone number) if you've tested positive. This will allow NADF to contact you for any questions regarding your experience with COVID-19.

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* 15. If you were tested positive, were you hospitalized?

Yes

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* 16. If you were hospitalized for COVID-19 did medical staff need to administer steroid dosing via IV hydrocortisone?

Yes

Other (please specify)

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* 17. What else do you think we should know about your experience with COVID-19.

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* 18. Please tell us what sources you are using for information about COVID-19 and adrenal insufficiency. (Check all that apply)

National Adrenal Disease Foundation (NADF) Website

NADF Facebook Page

NADF Twitter

NADF Instagram

NADF Support Groups

Other (please specify)

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* 19. How helpful are the updates from the National Adrenal Disease Foundation (NADF) regarding COVID-19 for those with adrenal insufficiency.

Extremely helpful

Very helpful

Somewhat helpful

Not so helpful

Not at all helpful

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* 20. What questions do you have about COVID-19 with respect to adrenal insufficiency that you would you like answered?

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* 21. We want you to stay safe during this pandemic. If there is anything else you'd want to share, please provide it here. Please note: this is an anonymous survey and will not have your contact information unless you provide it.

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* 22. Important Research on Adrenal Insufficiency and COVID-19:
NADF Board Member, Elizabeth Regan MD, PhD is a principal investigator for The Adrenal Insufficiency (AI) Study, and is coordinating with several other patient cohort studies to collect detailed information about who gets sick, what symptoms do they experience and what are the long-term outcomes. If you are interested in participating in this more detailed study, please use this link. Thank you!

https://redcap.njhealth.org/redcap/surveys/?s=P3DLE9D479