Winter 2026 Canadian Cancer Survivor Network Survey for Patient and Caregiver Input on New Treatment for Prostate Cancer

The pan-Canadian Oncology Drug Review invites patient groups to prepare and send in submissions so that patients and caregivers like you can be heard. Please join us and have your voice included in this important submission process. All information provided will remain anonymous when used in the submission.

The purpose of this survey is to provide the Canadian Cancer Survivor Network with insights and perspectives about living with prostate cancer from patients and caregivers in order to complete a patient evidence submission for new treatments that are under review in Canada.

The following indication is being considered for reimbursement:

Niraparib/abiraterone acetate (Akeega) for the treatment of adult patients with deleterious or suspected deleterious BRCA mutated (germline and/or somatic) metastatic castration-sensitive prostate cancer (mCSPC).

If you are a patient outside of this specification and feel you may also benefit from this treatment, we would like to hear from you as well. Your input could help inform what is desired from patients and caregivers in new and upcoming medications and treatments.

This survey should take approximately 5-10 minutes to complete and will remain open until end of day Sunday May 10, 2026.

Thank you for your participation!

*If genetic testing reveals mutations in the BRCA gene, it means these genes are no longer properly coding for proteins that help repair damaged DNA.

BACKGROUND INFORMATION: PLEASE TELL US A LITTLE ABOUT YOURSELF

Question Title

* 1. In which country do you live?

Canada

Not in Canada. I live in....

Question Title

* 2. If you are a resident of Canada, in which province or territory do you reside?

Question Title

* 3. How would you identify your gender?

Male

Female

Gender fluid

Non-Binary

Prefer not to answer

Describe:

Question Title

* 4. How would you identify your ethnicity? (Please check all that apply)

Black/Central or Southern African (e.g., of Nigerian, Ghanian, Ethiopian, etc. background)

Hispanic/Latino/Latina/Latinx/Central or Southern American (e.g., of Mexican, Colombian, Argentinian, etc. background)

East Asian (e.g., of Chinese, Japanese, Korean, etc. background)

Southeast Asian (e.g., of Filipino, Vietnamese, Thai, etc. background)

South Asian (e.g., of Indian, Pakistani, Bangladeshi, etc. background)

Middle Eastern/North African (e.g., of Iranian, Egyptian, Israeli, etc. background)

Indigenous to North America/Inuit/Métis/First Nations (e.g., of mainly North American background)

White/European (e.g., of French, English, Polish, Italian, etc. background)

Mixed/Biracial/Multiracial/Multi-select

Prefer Not to Answer

Describe:

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* 5. In what age category do you fall?

under 18

18-29

30-39

40-49

50-59

60-69

70-79

80+

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* 6. At what age were you, or the person in your care, diagnosed with prostate cancer?

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* 7. What is your relationship status? Please select all that apply.

Married or common-law

Widowed

Separated

Divorced

Dating

Single

Describe:

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* 8. Do you have any dependents? Please select all that apply.

Yes, infant/toddlers (under 5)

Yes, young children (6-12)

Yes, adolescents/teenagers (13-17)

Yes, adult children who need care (18+)

Yes, elderly family members

No, my children are all independent adults now

Describe: