Tethered Cord Syndrome - RASopathies RASopathies Question Title * 1. Disease CFC syndrome Costello syndrome Neurofibromatosis type 1 Noonan Syndrome CM-AVM SYNGAP1 Question Title * 2. Respondent's Name Initials Question Title * 3. Patient's Year of Birth Question Title * 4. Patient's Sex Male Female Question Title * 5. Does patient have a sacral dimple? Yes No Other (please specify) Question Title * 6. Does patient have gait changes/leg weakness? Yes No Other (please specify) Question Title * 7. Does patient have tight Achillies tendon? Yes No Other (please specify) Question Title * 8. Does patient have hand/foot deformities? Yes No Other (please specify) Question Title * 9. Does patient have constipation? Yes No Other (please specify) Question Title * 10. Does patient have leg pain? Yes No Other (please specify) Question Title * 11. Does patient have coordination issues? Yes No Other (please specify) Question Title * 12. Does patient have bladder or bowel incontinence? Yes No Other (please specify) Question Title * 13. Is patient clumsy/increased clumsiness? Yes No Other (please specify) Question Title * 14. Does patient have frequent falls/leg collapse? Yes No Other (please specify) Question Title * 15. Does patient have muscle atrophy? Yes No Other (please specify) Question Title * 16. Does patient have an odd stance? Yes No Other (please specify) Question Title * 17. Does patient have back pain? Yes No Other (please specify) Question Title * 18. Does patient have frequent headaches? Yes No Other (please specify) Question Title * 19. Does patient have scoliosis? Yes No Other (please specify) Question Title * 20. Does patient have rigid legs/spasticity? Yes No Other (please specify) Question Title * 21. Does patient have tuft of hair on lower back? Yes No Other (please specify) Question Title * 22. Does patient have a fat pad on lower back? Yes No Other (please specify) Question Title * 23. Does patient have frequent UTIs? Yes No Other (please specify) Question Title * 24. Does patient have lumbar lordosis? Yes No Other (please specify) Question Title * 25. Does patient have spasticity in arms? Yes No Other (please specify) Question Title * 26. Is patient suspected of having Tethered Cord syndrome? Yes No Other (please specify) Question Title * 27. Has patient had an MRI for suspected Tethered Cord syndrome? Yes No Results of MRI Question Title * 28. Has patient had urodynamic testing? Yes No Results of Urodynamic Testing Done