Workshop Evaluation 2018

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* 1. I attended as a:

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* 2. What is your race/ethnicity? (Check all that apply)

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* 3. How old are you

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* 4. Are you:

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* 5. What is the highest level of education you have completed?

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* 6. How knowledgeable were you about neuroendocrine & carcinoid tumors BEFORE this workshop?

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* 7. How knowledgeable were you about neuroendocrine & carcinoid tumors AFTER this workshop?

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* 8. As a result of this workshop:

  Strongly Disagree Disagree Neutral Agree Strongly Agree
My knowledge about neuroendocrine & carcinoid tumors treatment options increased.
I am confident I can ask my health care team questions about side effects of neuroendocrine & carcinoid tumors and its treatment.
I am confident I can make treatment decisions in partnership with my health care team.

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* 9. The social and emotional effects of cancer, and their impact on my life, have been adequately addressed by my healthcare team.

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* 10. I have experienced emotional distress due to my/ my loved one’s cancer.

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* 11. As a result of this workshop, I feel better prepared to emotionally cope with this cancer experience.

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* 12. I would recommend this workshop to others with cancer and their loved ones.

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* 13. General comments or suggestions about the workshop (i.e. are there other topics not covered in this workshop that you would be interested in, etc.):

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* 14. Where do you turn to seek information about cancer? (Check all that apply)

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* 15. Where do you turn for emotional support to deal with cancer? (Check all that apply)

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* 16. Is this the first workshop that you have attended at this site?

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* 17. Do you currently participate in a support group?

If you attended the workshop as a spouse/partner, family member or friend, please answer questions 18-20.
If you are a cancer patient/survivor please continue on to question 21.

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* 18. How strongly do you identify with the caregiving role?

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* 19. Approximately how much time do you spend each week providing care to someone with cancer?

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* 20. How strongly are you involved in coordinating your loved one’s care (i.e. transportation, cooking, finances, administering medication, etc.)?

If you are a person with cancer / cancer survivor, please answer the remaining items.

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* 21. If you have cancer/cancer survivor, what was your primary cancer diagnosis?

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* 22. How long has it been since you were first diagnosed with cancer?

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* 23. Do you have metastatic/advanced cancer?

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* 24. When you were first diagnosed, how involved were you in choosing a specific course or type of treatment?

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* 25. What kind of treatment are you receiving/have received in the past?

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* 26. When you were first diagnosed, how many treatment options did your healthcare team present to you?

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* 27. Please select the statements that BEST describe why you chose the treatment you did:

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* 28. Have you experienced any of the following side effects from treatment/ cancer itself? (Check all that apply)

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* 29.
Please consider joining the Cancer Experience Registry at www.CancerExperienceRegistry.org

It is a place where you can share your voice and learn from others while helping shape new programs, research and policy for those living with cancer.

If you would like to receive additional information on the Registry or on the educational materials we offer, please provide your first name and e-mail address.

Thank you for your feedback!

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