1.Do you know, or could you count, how many children, aged 16 and under, have a diagnosis of Usher Syndrome in your local authority area?

2.Are you aware of any specialist post-diagnostic support for children and families living with Usher Syndrome in your area/Scotland?

3.Do you have resources you offer families with a new diagnosis of Usher Syndrome? If not, would you like us to send you some resources?

4.Would you be willing to consider being a point of contact to collect and disseminate information to local families with Usher Syndrome?

5.Please provide your:Name/Title

6.Local Authority?

7.Who is the best contact to follow up?