Thank you for reading the BEFORE decision aid. We hope it provided you with some useful information.

If you had a recent breast cancer diagnosis and viewed the decision aid, you are invited to participate in a research project “Field Testing of the Begin Exploring Fertility Options, Risks and Expectations (BEFORE) Decision Aid” to evaluate the decision aid by completing an online survey.

The research project is led by Dr. Nancy Baxter from St. Michael’s Hospital in Toronto, Ontario. This survey is part of a larger study that is evaluating the use and delivery of the decision aid across multiple clinical sites in Canada. The survey will take about 2 minutes and can be completed at any time that is convenient for you. You have the right to exit the survey at any time for any reason and can skip questions you do not wish to answer. Your responses will only be saved once you submit them.

We greatly appreciate you taking the time to respond.

Note: No personal information will be collected if you choose to complete this survey. Your responses are completely anonymous and will not impact your care or employment. Do not identify individuals, or places, or use phrases that could identify you. You will not be compensated for your participation in this study.

By completing this survey you are agreeing to the following: As Survey Monkey’s servers are located in the United States, they are subject to the conditions of the former Patriot Act (now the USA Freedom Act). As such, we cannot guarantee that these files will not be accessed by others. The survey data will be saved for ten years in line with St. Michael’s Hospital policies. The data will be deleted from Survey Monkey and St. Michael’s Hospital secure internal computer server by a member of the research team after the study period.

If the questionnaire is completed and submitted, it will be assumed that consent has been given. You will be unable to withdraw your survey responses once they are submitted. However, participating in this study does not waive any of your legal rights to research related harm.
 
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Please answer the below questions by selecting all responses that apply to you.

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1. Are you participating in the Reducing the Burden of Breast Cancer in Young Women (RUBY) Study?

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2. Who told you about the BEFORE decision aid?

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3. How did you first access the online BEFORE decision aid?

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4. Are you satisfied with the way you found out about the BEFORE decision aid?

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5. Is this your first time reading the BEFORE decision aid?

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6. Please share any other comments you have on the BEFORE decision aid below:

If you would like to participate further in the evaluation of this decision aid or would like the results of the study, please contact the study team at spellerb@smh.ca or 416-864-6060 extension 77029 Please contact Dr. David Mazer, Chair of the Providence St. Joseph’s and St. Michael’s Healthcare Research Ethics Board (REB) at 416-864-6060, extension 2557 if you have questions as a research participant.

Thank you again for taking the time to complete this survey.

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