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* 1. ID Number (Internal use only leave blank)

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* 2. Name

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* 3. Contact Information

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* 4. Credentials

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* 5. Treatment Demonstration Grant Updates: Rosemary Britt

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the benefits of hydroxyurea for individuals with sickle cell
Describe the benefits of monthly blood transfusion for individuals with sickle cell
Compare the problems and risks associated with hydroxyurea and monthly transfusion treatment
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 6. Newborn Screening Grant Update: Kathy Norcott

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Define health literacy, and obstacles in achieving optimal health literacy in the sickle cell population
Describe challenges with medication/ treatment adherence in adults with sickle cell disease
Identify strategies to improve medication compliance in adults with sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 7. PICORI Grant Update: Mary Lamar

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
To share how the mission of the Patient Centered Outcomes Research Institute relates to the sickle cell community on a grassroots level
To leave attendees with knowledge of how they can get involved in PCORI
To give an overview of The Sickle Cell Association of New Jersey's experience with the PCORI P2P Tier's I. II & III Project and the SCDAA's Eugene Washington Award NSCAN Project
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 8. Sickle Cell Basics: Wanda Whitten-Shurney, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Explain pathophysiology of Sickle Cell Disease (SCD).
Explain Genetics associated with SCD
Explain SCD Treatments
Explain possible cures and research advances.
Explain racial and geo-graphical distribution of SCD.
Explain psychosocial issues related to SCD.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 9. Developing my Healthcare Passport: Andre Harris

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
The Learner will be able to understand the importance of a healthcare passport
The Learner will be able to know how to gather appropriate information to include in their healthcare passport
The Learner will be able to know how to use and successful communicate information found on the passport
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 10. Hydroxyurea and Transfusions: Andrew Campbell, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the indications for the use of Hydroxyurea in Sickle Cell Disease
Describe the indications for Acute and Chronic Blood Transfusions in Sickle Cell Disease
Understand the common complications associated Blood Transfusions and Hydroxyurea
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 11. Effective Transition: Leila Jerome Clay, MD, MCTS

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Discuss the need for transitioning from pediatric to adult health care in Sickle Cell Disease
Got Transition: 6 Core Elements
Discuss the incorporation of a Transition assessment in a SCD Transition Program
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 12. Chronic Organ Damage: Caterina Minnitti, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understand key health related quality of life domains affected by sickle cell disease.
Understand recommendations for patient reported outcomes measurement for children and adults with sickle cell disease.
Describe HealthMeasures person centered assessment resource for researchers and clinicians.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 13. Virtual Reality as an Adjunct Pain Management Therapy: Latika Puri, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Review mechanisms of pain in SCD
Review the use of VR in medicine
Review the use of VR in sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 14. The Opioid Crisis and Nursing Ramifications: Yvonne Carroll, RN, JD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
To understand the impact of the opioid crisis on people with sickle cell disease
To understand how federal and state opioid regulations impact people with sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 15. The Opioid Crisis-Non Pain Management Treatment Options: Genice T. Nelson, DNP, APRN, ANP-BC

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Briefly discuss and describe the pathophysiology of acute and chronic pain.
Briefly discuss and describe opioid pain management therapy.
Disuss and describe non-opioid pain medications and modalities for SCD pain treatments.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 16. Telemonitoring: Sophie Lanzkron, MD, MHS

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understand the difference between Telemedicine and Telementoring
Learn how Telementoring can improve access to high quality care for people living with sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 17. Chronic Pain: Deepika Darbari, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
 Chronic pain is a common symptom in sickle cell disease and results from multiple etiologies
Standardized approaches based on principles of managing chronic pain may be helpful for managing of chronic pain in sickle cell disease
AAPT criteria is a useful tool to classify chronic pain in sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 18. Transplantation Update: Courtney Fitzhugh, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Review indications for transplant in patients with sickle cell disease
Discuss HLA-matched sibling transplantation as a curative option for patients with sickle cell disease
Assess alternative donor transplant approaches for patients with sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 19. Managing Sickle Cell Disease in Older Adults: Swee Lay Thein

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Highlight the importance of regular comprehensive reviews and monitoring for early signs of organ damage
Recognize the contributions of age-related non-sickle non-sickle conditions that interact and add to the disease morbidity
Be more proactive in considering curative therapies previously offered to the younger patient
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 20. Using Implementation Science to Develop and Evaluate Psychosocial Interventions in SCD: Lori Crosby, PsyD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Define implementation science
Discuss an example of how quality improvement methods were used to develop and evaluate a psychosocial intervention for pediatric patients with sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 21. Examining Spiritual Well Being During Health Care Transition for Adolescents and Emerging Adults with Sickle Cell Disease: Dora Clayton-Jones, RN, PhD, CPNP-PC

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Distinguish between spirituality, spiritual distress, and spiritual well-being
Describe the meaning of spirituality for adolescents and emerging adults during health care transition
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 22. Peer Mentoring vs. Structured Education to Improve Transition to Adult Care in SCD: Ify Osunkwo, MD, MPH

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the study design of ST3P-UP Transition study and the rational for peer mentoring comparator
Review role of stakeholder engagement in successful implementation of ST3P-UP Study
Discuss opportunities for improved cross collaboration between clinicians/scientists and lay stakeholders in SCD community
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 23. Community Health Workers vs. A Mobile App to Improve Transition to Adult Care in SCD: Kim Smith-Whitley,MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understand the challenges of transition from pediatric- to adult-focused care in adolescents and young adults with chronic illness
Understand the components of the AAP's Got Transition program
List the goals of the PCORI-sponsored COMETS trial
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 24. Real Life Experience with Transplantation: Patient and Family Perspective: Wanda Whitten-Shurney, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Differentiate between the characteristics of acute sickle pain and chronic sickle pain
Describe the neurological changes typical of chronic pain and their impact on the clinical presentation of chronic pain
Support a multidisciplinary approach to management of chronic sickle pain
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 25. We've Fallen But We Must Get Up: Dizziness, Falling and Hearing Loss in Individuals Living with Sickle Cell Disease: M. Dawn Nelson, Ph.D. CCC-A

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the key infertility challenges for men with SCD and for women with SCD.
Understand and be able to discuss the process and concerns with preimplantation genetic diagnosis.
Identify patients who are potential candidates for oocyte cryopreservation.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 26. Diversity Panel Moderator

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe enuresis prevalence and etiology
Summarize the research literature on enuresis and sickle cell disease
Identify behavioral interventions for enuresis
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 27. Healing the Healer Provider Session: Wanda Whitten-Shurney, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understand broad definition of “caregiver” and common Challenges
Explore coping strategies for dealing with and caring for
such a special group of families and facing that challenge
Understand how the intersection of needing care due to illness,
disease, etc. impacts the caregiver, elder and the extended family
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 28. Self-Advocacy 101 for individuals with SCD: Carla Lewis

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
State the benefits of effective self –advocacy / patient advocacy.
Understand the Rights of Hospital Patients.
Discuss effective communication & ways of reporting concerning incidents.
Discuss resources available to strengthen self advocacy / patient advocacy efforts
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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* 29. Finding your Voice between the Patient and Caregiver: Trudy Tchume-Johnson, LSW, Velvet Brown Watts, MSW, CM

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
understand the importance of developmental milestones in healthcare
understand their respective roles as they transition through these milestones
be empowered with tools to support balance in their roles
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 30. Patient and Caregiver Perspectives on Areas of Burden in Sickle Cell Disease Management: Tilicia Mayo-Gamble, PhD, MPH, MA, CHES

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe barriers to disease self-management among individuals with sickle cell disease and their caregivers
Compare and contrast challenges of self-management between individuals with sickle cell disease and their caregivers residing in rural and urban communities
Describe results from a collaborative partnership between academic researchers and a community-based organization
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 31. Finding SCD Patients in Michigan- A Case Study: Wanda Whitten-Shurney, MD, Jeanne M. Loboda

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the results of a recent collaboration between the Michigan chapter of the Sickle Cell Disease Association of America and Global Blood Therapeutics, a biotechnology company dedicated to developing novel sickle cell disease-modifying therapeutics, to better target community providers and patients for educational outreach programs in the state of Michigan
Identify federally qualified healthcare centers that service the Medicaid population near moderate to high densities of affected individuals as targets for education
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 32. The Communication Awareness, Relationships and Empowerment (C.A.R.E.) Model: An Effective Tool for Engaging Urban Communities in Community-Based Participatory Research: Marlene Peters-Lawrence, BSN, RN, RRT

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
The C.A.R.E. (Communication, Awareness, Relationships and Empowerment) Research Recruitment Model. The culturally and historically sensitive C.A.R.E. Research Recruitment Model may be an effective means of recruiting and retaining predominantly Black/African American populations living in urban communities
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 33. Technology Access and Preferences for Smartphone Application Content Among Adults With Sickle Cell Disease and Their Caregivers: Tilicia Mayo-Gamble, PhD, MPH, MA, CHES

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe a community-engaged approach to access to resources among adults with sickle cell disease and their caregivers
Identify preferences for receiving technology-based self-management resources among adults with sickle cell disease and their caregivers
Determine patient preferences for self-management resources among sickle cell patients and caregivers residing undeserved rural communities
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 34. Digital Engagement in The Sickle Cell Community: Robin C. Howard

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Determine the educational resources that caregivers and individuals living with sickle cell disease use to help them better understand the disease, available treatment options, and sources for support
Understand how information found online is accessed, used, and shared
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 35. Novel Ways to Recruit New Health Care Professionals into The Sickle Cell Arena: Donna Pennington Monroe, MS, Dejoie

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
provide new mechanisms to identify potential partners</p><p>Examine ways to promote capacity buildung</p><p>Expand the definition of health care providers in the sickle cell arena
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 36. Geography Seems to be a Factor that Determines the Outcome of Transition for Children with Sickle Cell into Adult Programs: Nina Anderson, RN, DNP

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
The transition of patients with sickle cell disease (SCD) from pediatric to adult care providers represents a milestone in their lives.  TOVA 's mission is to provide Holistic Compassionate Comprehensive Care to persons living with a chronic medical condition like Sickle Cell Disease Anemia
Our aim is to increase Access to High Quality Specialty Care and promote health awareness to persons with complex chronic condition in order to achieve optimal health and wellness
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 37. Loneliness Predicts Next-Day Quality of Life In Sickle Cell Disease: A Micro-Longitudinal Analysis: Shawn Bediako, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Summarize research findings on loneliness in sickle cell disease
Identify the differences between prospective vs. cross-sectional research designs
Understand the interpretation of mixed effects modeling procedures</li><li>Articulate the association between loneliness and quality of life in SCD
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 38. Discovering and Breaking Down Barriers: Improving Compliance with Appointments in the Pediatric Sickle Cell Clinic: Carla Jones, MSN, RN, Kenneth Mitten, MSW

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Attendees will identify new strategies of improving compliance of clinic appointments within the pediatric sickle cell disease population
Discuss importance of continuity of care within a pediatric chronic disease population
Attendees will list common barriers preventing compliance with appointments within a pediatric sickle cell disease clinic
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 39. The Opioid Epidemic and CDC Guidelines: A Case of an Unfortunate Consequences Paved By Good Intentions: Cynthia Sinha, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understand the standpoint of adult SCD patients on the effect of the implementation of the CDC guidelines by healthcare professionals at various levels
Learn the barriers to pain management SCD patients experience as a result of implementation the CDC guidelines
Call for action:  how can the SCD community (patients, caregivers, stakeholders, and researchers) work together to influence future policy development for opioid therapy?
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 40. Availability of Information on Blood and Marrow Transplantation (BMT) Coverage Benefits for Patients With Sickle Cell Disease (SCD) Enrolled in Medicaid: Tatenda Mupfudze, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the availability of information on Medicaid coverage benefits for Bone Marrow Transplant (BMT) for patients with SCD
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 41. Stigma Moderates the Association Between SCD Pain Frequency and Emergency Department Utilization: Shawn Bediako, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Recognize the types of data contained in the Georgia SCDC dataset
Describe the iterative process of stakeholder engagement used by Georgia to develop its three-year SCDC analysis and dissemination plan
Understand the association between pain frequency and the use of emergency services for sickle cell-related pain
Define "stigma" and understand its additive role for understanding sickle cell pain and health services use
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 42. A Training Approach for Newborn Screening Personnel in Nigeria: Lewis Hsu, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Recognize that newborn screening for sickle cell disease in Nigeria wil involve many personnel (community health, primary care, laboratory)
Recognize that case scenarios can be an effective training approach to help personnel adapt newborn screening to local situations
Recognize that implementation science frameworks such as Getting To Outcomes can help to incorporate stakeholder goals, capacity and motivation for sickle cell disease newborn screening in Nigeria
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 43. The Importance of Social Work In Complex SCD Care: A Model for Clinical Intervention: Teresa Works, MSW, LCSW

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
The importance of the clinical social worker in a multidisciplinary Sickle cell team in improving patient care
How clinical social workers can save the hospital money through the reduction of  inpatient LOS and 30 day  re-admissions
Clinical social workers can improve health care adherence with patients by providing behavioral health and concrete services
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 44. The Forgotten Vital Sign: Use of A Distress Thermometer With Children, Adolescents and Young Adults Diagnosed with Sickle Cell Disease: Kenneth Mitten, MSW

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Attendees will have a thorough understanding of the necessity of measuring distress in children, adolescents and young adults and their families living with Sickle Cell Disease
Attendees will have a thorough understanding of the importance of educating families living with Sickle Cell Disease about distress early in their lives and the course of their treatment, arming them for their life as an individual with a chronic, lifelong disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 45. Effect of Long Term Treatment With Sc411 On Sickle Cell Crisis Rate in Children with Sickle Cell Disease: Beng Fuh, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
To evaluate the time to first sickle cell pain crisis (SCPC) in SUSTAIN study subgroups and the likelihood of not experiencing SCPC for the duration of the trial using post hoc analyses
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 46. Compassionate-Use Voxelotor (GBT440) For Up to 2 Years in Patients with Severe Sickle Cell Disease and Life-Threatening Comorbidities: Kenneth R. Bridges, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the clinical outcomes among 7 patients with severe SCD and life-threatening comorbidities who were provided once-daily voxelotor through a compassionate-use program for up to 2 years
Summarize the safety among 7 patients with severe SCD and life-threatening comorbidities who were provided once-daily voxelotor through a compassionate-use program for up to 2 years
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 47. Crizanlizumab 5.0Mg/Kg Increased the Time to First on-Treatment Sickle Cell Pain Crisis (SCPC) And the Likelihood of not Experiencing SCPC While on Treatment: Subgroup Analyses of the Phase 2 Sustain Study: Julie Kanter, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Identify that 60 minutes is the recommended time to first dose (TTFD) of analgesics for sickle cell disease (SCD) patients with acute pain crisis in the emergency department.
Describe how overcrowding in the emergency department can affect the TTFD of analgesics for SCD patients with acute pain crisis.
Compare how pain scores impact the TTFD of analgesics for SCD patients with acute pain crisis.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 48. Partner and Youth Barriers to Hydroxyurea Adherence in Adolescents  with Sickle Cell Disease: Arlene Smaldone, PhD, CPNP,CDE

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Identify the most frequently barriers to hydroxyurea (HU) use reported by (1) parents and (2) youth
Identify associations between total number of barriers reported and generic and disease-specific quality of life
Identify which youth HU barriers were reduced through participation in a community health worker intervention augmented by personalized text messages
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 49. Sickle Cell Patients With Leg Ulcers Have a Prothrombotic Profile: Ugochi Ogu, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
To review coagulation profile in sickle cell disease (SCD)
To describe coagulation profile in SCD patients with leg ulcers
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 50. Crizanlizumab Treatment is Not Associated With the Development of Proteinuria and Hematuria in Patients With Sickle Cell Disease: Sustain Study Safety Analysis: Julie Kanter, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Renal safety in SUSTAIN study: Results from the SUSTAIN study subanalysis suggests there is no association between the use of crizanlizumab and the risk of developing proteinuria or hematuria
Crizanlizumab overall tolerability: The observed cases of proteinuria and hematuria in patients treated with crizanlizumab are likely associated with the underlying disease. These findings further support the use of crizanlizumab as a well-tolerated treatment for preventing VOCs in SCD
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 51. Genome Editing to Fix the Sickle Cell Disease Causing Variant in Sickle Cell Patient Hematopoietic Stem Cells: Mathew Porteus, MD, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understand the basic mechanism of genome editing
Understand how the CRISPR/Cas9 nuclease tool can be used to efficiently modify hematopoietic stem and progenitor cells.
Understand how genome editing by homologous recombination is different than other strategies of genome editing
Understand the different ways to measure both the safety and efficacy of genome editing in primary human hematopoietic stem and progenitor cells.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 52. Correction of the Sickle Mutation in Hematopoietic Stem/Progenitor Cells with CRISPR/Cas9: The Berkeley/UCSF/UCLA Sickle Cell Clinical Translation Project: Mark Dewitt

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understand the promise and the challenges of CRISPR/Cas9 gene editing to treat sickle cell disease.
How to translate genome editing research into therapies. Why is it so hard?
What are the advantages of our approach? What are the disadvantages?
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 53. The Clinical-Stage SGC Stimulator Olinciguat Prevents Increase of Plasma Biomarkers of Intravascular Inflammation and Suppresses Leukocyte-Endothelial Interactions in Tnfa-Treated Mice: Boris Tchernychev, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Share data on the effects of olinciguat in vascular inflammation
demonstration of preclinical efficacy validating use in sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 54. Strategies and Next Steps for Improving Sickle Cell Disease Care: Highlights from The Sickle Cell Disease Treatment Demonstration Program (SCDTDP)

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the unique role of children’s literature as a valuable education and discussion tool for children with sickle cell disease (SCD)
Evaluate the effectiveness and usefulness of a children’s book for children with SCD and their families.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 55. Striving in the Workforce with Sickle Cell: Terri Booker, Esq. & Carla Lewis

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Review of reactive oxygen species (ROS)
Review of the role of Vitamin C in ameliorating ROS activity
Describe the challenge of managing sickle cell disease in less-developed countries: statement of the problem
Describe the in-vitro effect of Vitamin C on ROS in sickle red cells
Discuss demographic factors that influence ROS formation in sickle red cells
Future direction
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 56. Improving Provider Readiness for Young Adult Transitions: The (8) Behavioral Changes Providers Can Make to Improve Transition Outcomes: Teresa Works, MSW, LCSW

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understanding that "readiness for transition" can be abstract and difficult to assess in young adults with SCD
Provider "readiness" is much less abstract and easier to develop
Effective "transition" can be measured by attending appointments with an adult SCD provider, where disease management skills can continue to be developed
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 57. Pilot Group for Middle Schoolers with SCD: Jennifer Brereton, Psy.D

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
To share and discuss the group program created, and related results, for middle school patients with SCD at the Comprehensive Sickle Cell Center at CHOP.
2. To discuss factors and barriers related to attendance and participation in the group, as well as next steps.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 58. The Beats Program: Sickle Cell Health Education Through Music Therapy: Samuel Rodgers-Melnick, MT-BC

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Participants will be able to define music therapy
Participants will be able to explain how music therapists use music to address goals related to the care of young adults with sickle cell disease
Participants will understand new methods for teaching self-management strategies to young adults with sickle cell disease
Participants will understand new methods for communicating information related to sickle cell health to young adults with sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 59. Rate of Vaso-Occlusive Crisis Episodes Among Sickle Cell Disease Patients in the US Medicaid Population: Menaka Bhor, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
The researcher will be able to describe the prevalence of vaso-occlusive pain crisis in sickle cell disease by place of service
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 60. Psycho social Impact, Health Beliefs and Stigma of Leg Ulcers in Adults with Sickle Cell Disease in a National Sickle Cell Center: Mary Akua Ampomah

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
To investigate the psychopathology of adult SCD patients with and without leg ulcers
To examine the psychosocial impact of adult SCD patients with and without leg ulcers
To compare the perceived SCD stigma of of adult SCD patients with and without leg ulcers
To find out the perceived SCD related health beliefs of adult SCD patients with and without leg ulcers
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 61. Pravastatin-Medicated Modulation of Sickle Red Cell Adhesion Using Mouse Endothelial Cells in Vitro: Ogechukwu Egini, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Overview of non lipid-lowering effects of statins. Audience will learn other effects of statins beside lowering lipid levels
Review of sickle red cell-endothelial cell interactions. These interactions may mediate vascular occlusion
Presentation of evidence of reduced sickle red cell adhesion to pravastatin-treated mouse endothelial surface in vitro
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 62. The Strong-SCD Trial: A Phase 2 Study Ofolinciguat (IW-1701), A Stimulator of Soluble Guanylate Cyclase (sGC) Inpatients With Sickle Cell Disease (SCD) : Regina Graul, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Inform the audience about the Strong-SCD study
Discuss the progress of olinciguat from preclinical to clinical development
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 63. SC411 For Treatment of Children with Sickle Cell Disease: A Phase 2, Randomized, Double-Blind, Dose-Finding, Placebo-Controlled, Parallel-Group, Multi-Center Study (Scot Trial) : Matthew Heeney, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
To describe SCOT trial design
To discuss the clinical and biochemical effects of SC411, a new investigational drug for prevention of SCD crisis, on children with sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 64. Clinical Development of Rivipansel (GMI-1070) For the Treatment of Acute Vaso-Occlusive Crisis In Sickle Cell Disease: Lori Luck, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Recognize the complex pathophysiology of SCD-VOC and the contribution that selectin-mediated cell adhesion to the vascular endothelium makes to vaso-occlusion
Understand that rivipansel, a pan-selectin inhibitor, targets the underlying pathophysiology of VOC and is being developed as an acute treatment for
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 65. A Systematic Literature Review of Patient-Reported Outcome Instruments Used in Sickle Cell Disease: Menaka Bhor, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
To identify patient-reported outcome (PRO) and healthcare resource utilization (HCRU) instruments used in randomized clinical trials and real-world studies, and to evaluate their psychometric properties in order to provide recommendations of appropriate PRO endpoints for use in clinical trials for SCD treatments in the United States
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 66. Mental Health and Sickle Cell Disease: Selena Webster-Bass, MPH

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Gain knowledge in recognizing signs and symptoms of mental health challenges
Addressing structural inequities through family-driven, youth-guided and culturally responsive strategies
Cultivating coping skills, self-care strategies and resilience through the transformational power of spirituality, Kuumba and Ubuntu.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 67. Gene Therapy for Sickle Cell Disease: Fact or Fiction? : Julie Kanter, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understand the molecular basis of sickle cell disease
Evaluate the different types of stem cell therapy for SCD
Recognize the utility of gene therapy for sickle cell disease
Evaluate the barriers to gene therapy in sickle cell disease
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 68. Global Strategies for Sickle Cell Disease: Russell Ware, MD, PhD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
To summarize the pathophysiology and global burden of sickle cell anemia.
To provide current approaches to the diagnosis, screening, and treatment of sickle cell anemia.
To provide current approaches to the diagnosis, screening, and treatment of sickle cell anemia.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 69. National Partner Updates

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Gain insight into how a large Magnet recognized medical center improved the quality of care and patient experience of adults living with sickle cell disease.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 70. Patient Empowerment Luncheon

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Understand the role of comprehensive care in adult SCD management
Identify clinical relevant outcomes to improve upon.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 71. NIH SCDIC Session- Overview of NIH SCDIC

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Identify both components of the two-pronged approach used in the PASSAGES transition program.
Describe two interventions that the social worker used with patients in the clinical setting.
Name two skills that patients need for a successful health care transition.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 72. Hydroxyurea and Pregnancy: Russell Ware, MD

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the unique role of children’s literature as a valuable education and discussion tool for children with sickle cell disease (SCD)
Evaluate the effectiveness and usefulness of a children’s book for children with SCD and their families.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

Question Title

* 73. Emmaus Focus Group: Charles W. Stark, Pharm. D. Ashley Valentine

  5 4 3 2 1
Were the session objectives balanced and free of commercial bias?
Was an announcement made that MNA/ANCC does not endorse or approve any commercial products?
Did you receive a handout of the activity disclosures, were activity disclosures made prior to the start of the activity, and/or were you able to view the activity disclosures on the conference website or app prior to the activity?
Describe the unique role of children’s literature as a valuable education and discussion tool for children with sickle cell disease (SCD)
Evaluate the effectiveness and usefulness of a children’s book for children with SCD and their families.
Facilities were conducive to learning
Content was relevant to the objectives
Content was consistent with the stated program objectives/goals
The objectives for the session were achieved
Audiovisual/handout materials were effective
Was knowledgeable about the topic area
Had an effective presentation style
Used appropriate teaching strategies
Presented clearly and concisely
Content will be useful in my clinical practice

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