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Neurodiversity and Mental Health Survey
About Your Child/Young Person
*
1.
What is your child/young person’s age?
(Required.)
Under 5 years
5–10 years
11–16 years
17–25 years
*
2.
Do you feel your child/young person is neurodivergent?
(Required.)
Yes
No
Unsure
*
3.
Do they have a formal diagnosis?
(Required.)
Yes
No
Currently awaiting assessment
Received one diagnosis but awaiting another (e.g., diagnosed autistic but awaiting ADHD)
4.
How is your child/young persons diagnosis recorded
Autism
ADHD
Both (dual Diagnosis)
Other (please specify)
5.
If your child has traits of both Autism and ADHD, how would you prefer this to be represented in this survey?
Autism
ADHD
Both (dual Diagnosis)
Other (please specify)
6.
Do you feel the terminology used in official pathways matches what you understand about your child’s needs?
Yes
No
Not sure
7.
If awaiting an assessment, how long have you been waiting?
Under 6 months
6–12 months
1–2 years
2–3 years
3+ years
Referral requested but not accepted
8.
If your child/young person has a diagnosis, are they aware of it?
Yes
No
Partly / Not sure
9.
Does your child struggle with school attendance?
Yes
No
Not applicable (home educated, etc.)
10.
Do you feel your child/young person masks their needs in certain environments (e.g., home, school, social settings)?
Yes
No
Unsure
11.
Which area do you usually access health services from?
(This helps us understand which Integrated Care Board (ICB) supports your family.)
Derby & Derbyshire ICB
Tameside & Glossop ICB
Staffordshire & Stoke-on-Trent ICB
Other (please specify)
Wellbeing & Mental Health
12.
Have you had concerns about your child/young person’s wellbeing or mental health?
Yes
No
13.
Do you feel their mental health difficulties may be related to autism and/or ADHD?
Yes
No
Unsure
14.
When you first had concerns, who did you approach for support? (Tick all that apply)
School (Mental Health Lead, SENCO, Class Teacher)
GP
Family Hub
NeuroHub
Compass (Changing Lives)
CAMHS
Private Services
Did not seek support
Other (please specify)
15.
Are you aware of the Graduated Offer?
Yes
No
Unsure
16.
Have you heard of the THRIVE model?
Yes
No
Unsure
Support Before Referral
17.
Before a referral to MH services was considered, what support did your child receive in school?
18.
Were you aware of any school-based mental health staff involved in supporting your child?
19.
Were you guided to any online resources that you or your child could access?
Yes
No
20.
If yes, can you share the names or types of resources you were signposted to?
21.
Did you feel these supports were adequate before a referral was made?
Yes
No
22.
Were you informed that these adjustments are part of the graduated response process?
Yes
No
Awareness of Pathways and Adjustments
23.
Were you aware that reasonable adjustments are part of the graduated response?
Yes
No
24.
Do you feel informed about the steps in the ND pathway before and after referral?
Yes
No
Accessing Support
25.
Has your child/young person been referred to any mental health support services?
Yes
No
26.
Which services have they been referred to? (Tick all that apply)
Mental health support in school (wellbeing team, counsellor, apps like Kooth)
NeuroHubs
Compass – Mental Health Support Team in schools / Changing Lives
Family Hubs
First Steps
Bridge The Gap
Specialist Community Advisors
NHS Talking Therapies
CAMHS
Other (please specify)
27.
How long did it take from raising concerns to receiving a referral?
Under 1 month
1–6 months
6–12 months
1–2 years
Still waiting
28.
What has been the biggest barrier to getting support?
Experiences of Support
29.
Has your child ever been referred to MH services (e.g., CAMHS)?
Yes
No
30.
If yes, was the referral accepted or refused?
Accepted
Refused
31.
If refused, were you given a clear reason for the refusal?
Yes
No
32.
Were you advised on next steps after the refusal?
Yes
No
33.
Did you feel supported in understanding why the referral was refused?
34.
Has your child had an assessment with a mental health service?
Yes
No
Assessment offered but not yet completed
Referral requested but not offered
Referral made but not accepted
35.
If an assessment has taken place, are you now waiting for support?
Yes
No
Referral rejected
Not applicable
36.
How long have you been waiting for support after assessment?
Under 1 month
1–3 months
4–7 months
8–12 months
1–2 years
Still waiting
Not applicable
37.
Which services are currently involved with your child/young person?
38.
How would you rate communication from services?
Very Poor
Poor
Satisfactory
Good
Excellent
39.
Do you feel able to speak to someone easily when needs change?
Yes
No
Sometimes
40.
Did you know where to go when needs escalated?
Yes
No
Not applicable
41.
Were you responded to appropriately?
Yes
No
No applicable
42.
Do you feel practitioners/services understand neurodivergent needs and how these impact mental health?
Yes
No
Sometimes
Other (please specify)
43.
Do you feel services are able to meet the needs of your neurodivergent child?
Yes
No
Maybe
Parent Carer Experiences
44.
Has your own wellbeing or mental health been affected while navigating services for your child?
Not at all
Slightly
Moderately
Significantly
Prefer not to say
45.
Have you been offered any support for yourself?
Yes
No
Not applicable
46.
If yes, what support was offered? If no, what would have been helpful?
47.
What support has been most helpful to your child or family?
48.
Is there anything else you want us to know?
