YOUR PARTICIPATION IN HEALTH RESEARCH

Help us understand what keeps you from taking part in research studies

The goal of this survey is to find out why it is difficult to get people to participate in health research and why it is even harder to get people from underrepresented groups (i.e., women, the elderly, minorities, and marginalized people) to influence and take part in health studies.

This survey will take about 5 minutes to complete.
Scikoop will not collect or communicate any sensitive information.

By completing this survey, you declare that you:
- Have read the preceding information
- Are at least 18 years old

To see the final results, visit www.scikoop.com and follow us on Facebook, LinkedIn, Twitter and Instagram

Question Title

* 1. In what country do you live?

Canada

Other (please specify)

Question Title

* 2. In the past two years, have you heard about health research studies looking for volunteers ?

Yes, through a patient network or community

Yes, at the hospital (poster or mail)

Yes, e-mail or newsletter

Yes, public place advertisement (ex: in the subway)

Yes, my healthcare provider / Doctor / Researchers

Yes, on a participant recruiting website

Yes, on social medial

No, I haven't heard of any studies looking for people to be part of them.

Other

Question Title

* 3. What motivates you, or may motivate you, to take part in health studies? (choose many options if needed):

I find the subject of the research interesting.

I have a health problem that needs more research.

Someone in my family or who is close to me has a disease that needs more research.

An invitation by my doctor or someone I know in charge of a study.

I like that there is money to be made.

If there are free treatments.

I don't want to be a part of any study.

Other

Question Title

* 4. What is stopping you, or has stopped you, from taking part in medical studies? (choose many options if needed):

I was taken out of a study.

I feel uncomfortable or fear of being disrespected.

I don't see how the research will be good for me.

I have a hard time getting to the place where the research is done.

It's hard to fit the visits ou the surveys into my schedule.

It's hard to adapt to the researchers demands.

I don't want to be placed in the control group.

I'm worried about the side effects or extra tests that might be required.

I don't get enough information or answers to my concerns.

I don't understand what this will be used for.

None of the above

Other (please specify)

Question Title

* 5. Have you ever been cut out of a health study? (choose many options if needed):

No, I have never been cut out of a study

Yes, but I don't know why I was left out

Yes, because of my ethnicity, age or gender

Yes, because I have a disease or a lot of health issues

Yes, because I have a disability

Yes, because I have difficulties to communicate (ex: handicap, langue, etc)

Yes, because of my habits (ex: I am a smoker)

Other (please specify)

Question Title

* 6. In your opinion, what is the smallest reward you should get for taking part in a health research study?

I don't need a reward.

Receive a gift card.

Receive money.

Take part in a lottery (unsure to get a reward).

Receive free healthcare.

Receive even more attention

Receive new treatments

Other (please specify)

None of the above

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* 7. What is your age?

18-24

25-34

35-44

45-54

55-64

65-74

75 or older

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* 8. Which ethnicity best describes you? (Please choose only one)

Indigenous

South-Asian

Chinese

Black

Philippino

Arab

Latin American

White / Caucasian

Prefer not to say

Multiple ethnicity / Other (please specify)

Question Title

* 9. Gender: How do you identify?

Woman

Non-binary

Man

Prefer to self-describe, below

Self-describe:

Question Title

* 10. To learn more about what we do or how we can help you take part in research, please give us your email.

Email Address