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COVID-19 Survey for patients and caregivers
We are trying to determine the impact of COVID19 on our patients with epilepsy, and their care. We would be grateful if you could complete the following questions.
For person completing this survey:
1.
Are you?
A person with epilepsy
A parent / carer of a person with epilepsy
2.
In what country do you live?
Afghanistan
Albania
Algeria
Andorra
Angola
Anguilla
Antigua and Barbuda
Argentina
Armenia
Australia
Austria
Azerbaijan
Bahamas
Bahrain
Bangladesh
Barbados
Belarus
Belgium
Belize
Benin
Bhutan
Bolivia (Plurinational State of)
Bosnia and Herzegovina
Botswana
Brazil
British Virgin Island
Brunei Darussalam
Bulgaria
Burkina Faso
Burundi
Cabo Verde
Cambodia
Cameroon
Canada
Cayman Islands
Central African Republic
Chad
Chile
China
Colombia
Comoros
Congo
Costa Rica
Côte D'Ivoire
Croatia
Cuba
Cyprus
Czech Republic
Democratic People's Republic of Korea
Democratic Republic of the Congo
Denmark
Djibouti
Dominica
Dominican Republic
Ecuador
Egypt
El Salvador
Equatorial Guinea
Eritrea
Estonia
Ethiopia
Fiji
Finland
France
Gabon
Gambia
Georgia
Germany
Ghana
Greece
Grenada
Guatemala
Guinea
Guinea Bissau
Guyana
Haiti
Holy See
Honduras
Hungary
Iceland
India
Indonesia
Iran (Islamic Republic of)
Iraq
Ireland
Israel
Italy
Jamaica
Japan
Jordan
Kazakhstan
Kenya
Kiribati
Kuwait
Kyrgyzstan
Lao People’s Democratic Republic
Latvia
Lebanon
Lesotho
Liberia
Libya
Liechtenstein
Lithuania
Luxembourg
Madagascar
Malawi
Malaysia
Maldives
Mali
Malta
Marshall Islands
Mauritania
Mauritius
Mexico
Micronesia (Federated States of)
Monaco
Mongolia
Montenegro
Montserrat
Morocco
Mozambique
Myanmar
Namibia
Nauru
Nepal
Netherlands
New Zealand
Nicaragua
Niger
Nigeria
Norway
Oman
Pakistan
Palau
Panama
Papua New Guinea
Paraguay
Peru
Philippines
Poland
Portugal
Qatar
Republic of Korea
Republic of Moldova
Romania
Russian Federation
Rwanda
Saint Kitts and Nevis
Saint Lucia
Saint Vincent and the Grenadines
Samoa
San Marino
Sao Tome and Principe
Saudi Arabia
Senegal
Serbia
Seychelles
Sierra Leone
Singapore
Slovakia
Slovenia
Solomon Islands
Somalia
South Africa
South Sudan
Spain
Sri Lanka
State of Palestine
Sudan
Suriname
Swaziland
Sweden
Switzerland
Syrian Arab Republic
Tajikistan
Thailand
The former Yugoslav Republic of Macedonia
Timor-Leste
Togo
Tonga
Trinidad and Tobago
Tunisia
Turkey
Turkmenistan
Turks and Caicos
Tuvalu
Uganda
Ukraine
United Arab Emirates
United Kingdom of Great Britain and Northern Ireland
United Republic of Tanzania
United States of America
Uruguay
Uzbekistan
Vanuatu
Venezuela (Bolivarian Republic of)
Vietnam
Yemen
Zambia
Zimbabwe
You/person with epilepsy during the COVID-19 crisis
3.
Have you/your child or another member of your household been diagnosed with COVID-19?
Me
My child/person I look after
Household member
Yes, tested positive
Me
My child/person I look after
Household member
Presumably yes (fever, dry cough, shortness of breath, diarrhea or other COVID like symptoms and positive chest xray/CT)
Me
My child/person I look after
Household member
Possibly yes (fever, dry cough, shortness of breath, diarrhea or other COVID like symptoms but no tests done)
Me
My child/person I look after
Household member
4.
Has the seizure frequency changed for you/or person with epilepsy during the COVID-19 period?
No
Yes, increased
Yes, decreased
5.
Have you/or person living with epilepsy had difficulty obtaining medication?
Yes
No
6.
Have you/or person living with epilepsy had difficulty accessing your epilepsy health care professionals or support team during the COVID-19 period?
Yes
No
Not applicable
Please provide specifics
For persons with epilepsy:
The following questions ask about how you have been feeling during the past 30 days. For each question, please check the number that best describes how often you had this feeling.
7.
Your wellbeing during the COVID-19 crisis.
During the last 30 days, about how often did you feel...
All of the time
Most of the time
Some of the time
A little of the time
None of the time
... nervous?
All of the time
Most of the time
Some of the time
A little of the time
None of the time
... hopeless?
All of the time
Most of the time
Some of the time
A little of the time
None of the time
... restless or fidgety?
All of the time
Most of the time
Some of the time
A little of the time
None of the time
... so depressed that nothing could cheer you up?
All of the time
Most of the time
Some of the time
A little of the time
None of the time
... that everything was an effort?
All of the time
Most of the time
Some of the time
A little of the time
None of the time
... worthless?
All of the time
Most of the time
Some of the time
A little of the time
None of the time
8.
In relation to Covid-19, please let us know if any of the following are causing you anxiety at the current time?
A lot of anxiety
A little anxiety
No anxiety
Worry about getting COVID-19
A lot of anxiety
A little anxiety
No anxiety
Worry about having to self-isolate with epilepsy
A lot of anxiety
A little anxiety
No anxiety
Interruption to family or social life / isolation
A lot of anxiety
A little anxiety
No anxiety
Worry about seizures worsening/ recurring
A lot of anxiety
A little anxiety
No anxiety
Worry about financial/ employment matters
A lot of anxiety
A little anxiety
No anxiety
Lifestyle changes (not getting enough sleep, exercise; poor diet or difficulty getting food)
A lot of anxiety
A little anxiety
No anxiety
Caring for others
A lot of anxiety
A little anxiety
No anxiety
Other (please specify)
9.
Is there specific information/support you feel you need at this time?
Online self-management programs
Psychological support
Home delivery of medication
Access to alarms or seizure detection devices
Access to food
Receive epilepsy medical advice and support by phone, or by tele/video visit
Trustworthy and up-to-date information about epilepsy and COVID-19
Other (please specify)