* 1. How many times has your child been seen in the Trisomy 21 clinic?

* 2. Were the recommendations made during your visit clearly explained?

* 3. What recommendations did you find most useful?

* 4. Did you have any difficulty carrying through with the recommendations?

* 5. Were there concerns or recommendations you would have liked to discuss further?

* 6. Were you happy with the structure and flow of your clinic visit?

* 7. There are many health care providers who do an excellent job of providing care to individuals with Down syndrome and their families. Have you worked with any health care providers you would like to recommend to other parents of other individuals with Down syndrome? Names will not be listed publicly, but will be added to referral list held in the office.

* 8. On a scale from 1-10 (1 being extremely dissatisfied and 10 being completely satisfied), how would you rate your overall experience in the Trisomy 21 Program at The Children’s Hospital of Philadelphia?

* 9. Are there any other recommendations/suggestions you feel would improve a family’s experience during a clinic visit in the Trisomy 21 Program?