Thank you for taking the time to complete this survey.

We want to understand how people engage with the Huntington's Disease Association, what difference our work makes, and how we can improve our services, support and activities.
Whether you have used one service or many, recently connected with us, have been involved for years, or have never used our services, your views matter. We are particularly keen to understand what helps people access support, as well as any barriers that may prevent them from doing so. Your feedback is important and will help shape our future work.
The survey should take approximately 10-15 minutes to complete.

Question Title

1. What best describes your connection to Huntington's disease?

Please select all that apply. (Required.)

Question Title

2. Which county do you live in?

Question Title

3. How did you first hear about the Huntington's Disease Association? (Required.)

Question Title

4. How long have you been connected with the Huntington's Disease Association? (Required.)

Question Title

5. Which Huntington's Disease Association services, activities or resources have you used or engaged with?
Please select all that apply. (Required.)

Question Title

6. How often do you currently engage with the following? (Required.)

  Weekly Monthly A few times a year Rarely Never
Specialist Adviser service (SHDAs)
Local branch or support group
Youth Service (HDYES)
Website
Webinars or online events
Social media
Policy campaigns
Fundraising activities

Question Title

7. What affects how often you engage with the Huntington's Disease Association?

Please select all that apply. (Required.)

Question Title

8. How would you rate the Huntington's Disease Association's communications in keeping you up to date with the work of the charity and other developments relevant to Huntington's disease? (Required.)

Question Title

9. What could we do to improve how we communicate with you to keep you up to date with the work of the charity and other areas that are relevant to Huntington’s disease?

Question Title

10. Thinking about your experience with the Huntington's Disease Association, please indicate how much you agree or disagree with the following statements. (Required.)

  Strongly agree Agree Neither agree no disagree Disagree Strongly disagree
I have a better understanding of Huntington's disease because of the Huntington’s Disease Association
I am better informed about support and services available to me because of the Huntington’s Disease Association
I feel less isolated because of the Huntington's Disease Association
The Huntington's Disease Association has helped improve my emotional wellbeing
The Huntington's Disease Association has helped me cope better with challenges related to Huntington's disease
The Huntington's Disease Association has helped me feel better prepared for the future
Our policy campaigns are effective in creating meaningful change on the issues we focus on (e.g. Mental health, benefits and care co-ordination)

Question Title

11. How likely are you to recommend the Huntington's Disease Association to someone else affected by Huntington's disease? (Required.)

0 10
Clear
i We adjusted the number you entered based on the slider’s scale.

Question Title

12. Can you give an example of how the Huntington’s Disease Association has made a difference for you?

Question Title

13. Which of the following do you think should be the Huntington's Disease Association's highest priorities over the next 1-3 years?

Please select up to three. (Required.)

Question Title

14. Looking ahead, what support or information would be most helpful to you?

Question Title

15. Are there any services, activities or support that you would like the Huntington's Disease Association to offer in the future?

Question Title

16. What does the Huntington's Disease Association do particularly well?

Question Title

17. What could the Huntington's Disease Association do better?

Question Title

18. Is there anything the Huntington's Disease Association should stop doing, reduce, or approach differently?

Question Title

19. Is there anything else you would like to tell us about?

Question Title

20. Would you be willing to take part in focus groups about Huntington's Disease Association services and activities? (Required.)

T