Transplant Community Education Survey Question Title * 1. Age OK Question Title * 2. Your relationship to transplant (select all that apply) Transplant Recipient/Candidate Caregiver (spouse, parent, child, sibling, friend, etc.) Donor Donor Family Other (please specify) OK Question Title * 3. Type of organ (select all that apply) Kidney Pancreas Liver Heart Lung Small Bowel Other (please specify) OK Question Title * 4. Number of years since transplant (if multiple, select all that apply) <1 1-4 years 5-9 years 10-14 years 15-19 years 20 + years Waiting for transplant Not applicable OK Question Title * 5. I have been sufficiently educated on post-transplant medications, including their risks and benefits. Strongly agree Agree Neither agree nor disagree Disagree Strongly disagree N/A OK Question Title * 6. I have been sufficiently educated on the effects of receiving a transplant on my general health and well-being. Strongly agree Agree Neither agree nor disagree Disagree Strongly disagree N/A OK Question Title * 7. Please rank the following topics by interest, with "1" as the most interest and "22" as the least interest. 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Transplant Immunology 101: basic background about immunology of transplantation 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Transplant Research: Challenges and future directions 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 How immunosuppression works and why you need it 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Transplant medication pears: things to know about transplant medication 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Medication adherence (barriers, solutions/helpful tips) 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Medication cost/coverage (brief overview of the basics and pearls for minimizing the risk of running out of meds due to cost, etc.) 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Monitoring transplant function/organ health: current tools and future directions 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 My doctor says I/my organ is doing well. What does doing well mean? 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Vaccines for transplant candidates, recipients, and caregivers 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Common transplant complications and how to prevent them 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Managing diabetes after transplant 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Safe living and travel 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 What lifestyle changes should I expect early after transplant? 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Exercise and fitness after transplant 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Managing mental health issues after transplant 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Pregnancy after transplant 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 What my caregiver should expect: medications, complications, recovery, etc. 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Navigating the conflicting emotions of joy in providing life through donation and grieving the loved one 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Managing nutrition post-transplant 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 How does organ allocation work for patients listed for organ transplantation? 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Malignancy screening/precautions with long term immunosuppression 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 Long-term outcomes of living donation OK Question Title * 8. Please list other topics you would like education on: OK Question Title * 9. In which formats do you prefer to receive education? (select 2) 10 minute video lecture 30 minute video lecture Pamphlet Written information posted on a website Podcast Slideset Email/newsletter OK DONE