When a new disease such as TANGO2 is discovered, there is a lot to learn. Many of the physicians caring for children with TANGO2 have never seen or managed this disease. The best way to learn about a new disease is to gather as much information as possible. As parents living with children with TANGO2, you can offer so much insight and help us learn more about the disease. We hope to use this information to identify similarities and differences among the children, identify treatments that work and don’t work, and discover areas that need further research. Ultimately our hope is to find a cure but without information, this is a challenge. We would like to ask if you would be willing to share information about your child with us. By participating in the natural history study, you will spend approximately 1 hour by phone with one of our team members.