Sarcoma Community Survey

The Sarcoma Foundation of America (SFA) is committed to providing support to the sarcoma community through funding research, providing educational opportunities, advocating on behalf of sarcoma patients and survivors, and amplifying the voice of the sarcoma community.

SFA is interested in hearing from you regarding the needs in the sarcoma community.

Question Title

* 1. I am a...

Sarcoma Patient in Current Treatment

Sarcoma Survivor

Caregiver

Medical Professional

Other

If you answered patient or survivor, please list your stubtype. If you are not a patient or survivor, please enter N/A.

Question Title

* 2. Rank these in priority for the sarcoma community with 1 being the lowest and 6 being the highest

Sarcoma Advocacy - Influencing change on issues that impact the sarcoma community. Advocacy can include taking action and using your voice to make change related to policy and research efforts.

Sarcoma Awareness - Increasing public knowledge of sarcoma and the needs of the sarcoma community.

Sarcoma Patient/Survivor/Caregiver Education - Opportunities for patients, survivors, and caregivers to have access to information on important issues, such as those related to treatment, research, and survivorship.

Sarcoma Research - Efforts to find new therapies and ultimately the cure for sarcoma. This includes basic research as well as clinical trials.

Clinical Trials - More information about clinical trial participation, clinical trial matching, and current trials in sarcoma.

Community Engagement - More opportunities for the sarcoma community to engage/come together either in person or online.

Question Title

* 3. What challenges do you see in the world of sarcoma (outside of lack of therapies) that are a priority? Please choose all that apply.

Lack of research funding

Limited awareness about the disease

Legislative and regulatory issues

Access to treatment/sarcoma specialists

Other (please specify)

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* 4. What do you think are the greatest needs in the sarcoma community?

Question Title

* 5. The options listed below are examples of topics that may be useful in helping increase your knowledge about sarcoma.

What topics are you most interested in learning about? Please select all that apply.

Immunology

Genomics

Clinical Trials

Sarcoma Research

Information About Current Treatments

Survivorship Issues

Psychosocial Issues

Young Adult Sarcoma Issues

Pediatric Sarcoma Issues

Role of the Caregiver

Critical Appraisal of Scientific Articles

Drug Development Process

FDA Drug Approval Process

Legislative-Policy Advocacy

Please share any specific topics or areas of interest that you would like to see offered in sarcoma education programming

Sarcoma Community Survey

Question Title

* 1. I am a...

Question Title

* 2. Rank these in priority for the sarcoma community with 1 being the lowest and 6 being the highest

Question Title

* 3. What challenges do you see in the world of sarcoma (outside of lack of therapies) that are a priority? Please choose all that apply.

Question Title

* 4. What do you think are the greatest needs in the sarcoma community?

Question Title

* 5. The options listed below are examples of topics that may be useful in helping increase your knowledge about sarcoma. What topics are you most interested in learning about? Please select all that apply.

Question Title

* 6. What should be the priorities for the sarcoma community in 2021?

* 5. The options listed below are examples of topics that may be useful in helping increase your knowledge about sarcoma.

What topics are you most interested in learning about? Please select all that apply.