Medical Support - Life Limiting Diagnosis

Quantifying Need

Thank you for taking time to complete the attached survey. This anonymous survey will be used to help politicians and healthcare administrators understand the importance of nurse coordinator rolls in the high risk setting of prenatal care and ideally present the importance of allocating funding to those rolls. You can reach out to Morgan from Elaina's Light to understand more about this initiative at morganpallardy@gmail.com or by visiting elainaslight.godaddysites.com

Question Title

* 1. How far into your pregnancy were you when you received a life limiting diagnosis?

8-15 weeks gestation

16-26 weeks gestation

27-40 weeks gestation

at delivery

Question Title

* 2. During your pregnancy were you under the care of a high risk obstetrician (sometimes referred to as Maternal Fetal Health or Maternal Fetal Medicine) in conjunction with your regular OBGYN office?

Yes

Question Title

* 3. If you did receive additional care from a high risk OBGYN, was there a person such as a nurse coordinator or care coordinator that handled your case and worked with you directly?

Yes

Question Title

* 4. Check all that apply regarding how the aforementioned care coordinator or nurse coordinator assisted you.

Assisted in scheduling additional appointments within their practice

Assisted in scheduling additional appointments outside of their office such as genetics, NICU, bereavement, etc.

Made themselves available to answer questions when you had them

Researched and followed up when you had a question that they could not immediately answer

Assisted in helping you understand your child's condition as well as the pregnancy and birthing process associated with this condition

Assisted in helping to guide you in creating a birth plan

Was present at some time during your hospital stay for delivery

Communicated with your nurses during your delivery when necessary

Communicated with your regular OBGYN office, specifically your delivering physician

None of the above

Other (please specify)

Question Title

* 5. Did you feel supported in your medical journey during your pregnancy?

Yes

Question Title

* 6. What would you score your level of grief during your pregnancy?

I did not experience grief

I experienced grief but it was manageable

The grief I experienced was debilitating

Question Title

* 7. What would you score your level of grief after delivery or pregnancy end? (please choose NA if you have not yet delivered your baby)

I did not experience grief

I experienced grief but it was manageable

The grief I experienced was debilitating

Question Title

* 8. Did you feel you had a strong support system via family and or friends?

Yes

Question Title

* 9. Would you recommend your high risk OBGYN's office to someone in your situation?

Yes

Question Title

* 10. Given the sensitive nature of your pregnancy, did you feel that your delivery went as well as could be expected?

Yes