FasterCures 2025 Patient Organizations Research Capacity-Building Needs Assessment |
Every three years, FasterCures deploys a survey to better understand how patient organizations are engaging in research, supporting innovation, and advancing patient-centered outcomes. In addition to understanding current activities, we aim to learn about organizations’ needs, priorities, and challenges. The findings will inform future FasterCures and broader network activities, resources, and programming designed to strengthen organizational capacity across the community.
Your organization’s input is vital to strengthening the role of patient organizations in advancing research and innovation. By completing this survey, you will:
Your organization’s input is vital to strengthening the role of patient organizations in advancing research and innovation. By completing this survey, you will:
- Gain insight into your organization’s current level of research capacity
- Guide the direction of future tools, trainings, and opportunities based on identified needs and gaps
- Highlight the important role patient organizations play in research and innovation
- Contribute to data that can help drive advocacy, policy, and systemic change
This newest iteration of the needs assessment is grounded in the Milken Institute Research Partnership Maturity Model (RPMM) and incorporates questions derived from patient organization-vetted performance indicators. These indicators will allow FasterCures to track patient organization research impact and capacity over time and provide a clearer picture of the patient organization research landscape.
All responses will be de-identified and analyzed in aggregate. No individual organization’s data will be shared.
The survey should take approximately 20 minutes to complete. Most questions are multiple choice or check-all-that-apply, and no special preparation or documents are required. Please answer based on your organization’s current practices and activities. You do not need to answer every question if it does not apply to your organization.
The collective findings from this needs assessment will be reported back to the community, providing a pulse check on the state of patient organizations’ research capacity and impact. No individual-level or identifying information will be shared externally.
The survey will auto-save as you advance to the next page. For your convenience, a downloadable PDF of the survey is available so you can preview all questions in advance. Please note, however, that final responses must still be submitted through SurveyMonkey.
All responses will be de-identified and analyzed in aggregate. No individual organization’s data will be shared.
The survey should take approximately 20 minutes to complete. Most questions are multiple choice or check-all-that-apply, and no special preparation or documents are required. Please answer based on your organization’s current practices and activities. You do not need to answer every question if it does not apply to your organization.
The collective findings from this needs assessment will be reported back to the community, providing a pulse check on the state of patient organizations’ research capacity and impact. No individual-level or identifying information will be shared externally.
The survey will auto-save as you advance to the next page. For your convenience, a downloadable PDF of the survey is available so you can preview all questions in advance. Please note, however, that final responses must still be submitted through SurveyMonkey.
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