Exploring the prevalence of fatigue among autoimmune patients

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* 1. Have you been diagnosed with an autoimmune disease? 

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* 2. How many autoimmune diseases do you have?

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* 5. Do you suffer from fatigue?

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* 6. Would you say fatigue is a major issue for you?

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* 7. Which statement better describes your fatigue:

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* 8. Would you say that fatigue is “probably the most debilitating symptom of having an autoimmune disease?”

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* 9. Does your fatigue impact your:

  A great deal A lot A moderate amount A little None at all
Overall Quality of Life
Sense of Self-Esteem
Family Relationships
Parenting Abilities
Romantic Relationships
Professional Relationships
Career/ Ability to Work
Mental Health/ Emotional State/ Mental Well-being

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* 10. Have you ever discussed your fatigue with your doctor?

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* 11. Did your doctor take your fatigue seriously? 

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* 12. Did your doctor understand the extent of your fatigue?

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* 13. Did your doctor prescribe or suggest treatment options for your fatigue?

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* 14. Have you ever discussed your fatigue with your family and friends? 

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* 15. Did your family and friends take your fatigue seriously?

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* 16. Did your family and friends understand the extent of your fatigue?

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* 17. Do you believe others judge you negatively because of your fatigue?

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* 18. What would you like people to know about your fatigue?

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* 19. Has your fatigue impacted your ability to work? 

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* 20. Did your fatigue cause you to lose your job?

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* 21. Have you filed for disability as a result of your fatigue?

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* 22. What’s your current work status?

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* 23. Are you/your family in financial distress as a result of your autoimmune disease-related fatigue?

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* 24. Has your fatigue resulted in:

  A great deal A lot A moderate amount A little Not at all
Depression
Anxiety
Increased Emotional Stress
Sense of Isolation

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* 25. Have you sought professional mental health treatment as a result of your fatigue?

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* 26. Has your primary care doctor suggested you contact a mental health professional as a result of your fatigue?

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* 27. How much do you think race played in the acknowledgement or lack thereof of your fatigue symptoms?

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* 28. What is your age?

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* 29. What is your gender?

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* 30. What is your ethnicity? (Please select all that apply.)

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* 31. Would you be willing to be contacted for further information? If yes, please answer the following:

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