Genetic Support Group Database Heathcare Provider Input

We are planning to create a database of Australian support groups for rare and undiagnosed genetic diseases. The main purpose of the database is to make it easier for people to find and connect with a support group that is relevant to them.

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* 1. How would a database like this one benefit your practice?

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* 2. What do you think the inclusion criteria for a support group in this type of database should be?

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* 3. What information about a support group do you think would be useful to collect?

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* 4. What is your occupation? Check all that apply:

GP

Paediatrician

Clinical geneticist

Genetic counsellor

Other (please specify)

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* 5. Where are you based?

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* 6. If you would like to stay up to date about this project, please share your email here: