RARE Portal Survey: Share Your Feedback

Your feedback will contribute to the RARE Portal website refresh. By submitting this form, you agree that Rare Voices Australia may also use/share the information provided for grant activity reporting. The survey will take approximately 2 minutes to complete.

Question Title

* 1. Which stakeholder group best describes you?

Person living with a rare disease

Rare disease group/organisation leader

Health professional

Researcher

Government

Industry

Other

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* 2. Please check the priority populations you identify with:

Person living with a rare disease

Person suspected of having an undiagnosed rare disease

Aboriginal and Torres Strait Islander

Culturally and linguistically diverse (CALD) background

Person with a disability

Person currently experiencing socio-economic disadvantage

Person living in regional, rural or remote location

None of the above

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* 3. What information on the RARE Portal was most helpful?

Question Title

* 4. How can we improve the RARE Portal?

Question Title

* 5. If needed, would you visit the RARE Portal again?

Yes

Unsure