Thank you for taking the time to complete this survey.
We want to understand how professionals engage with the Huntington's Disease Association, what difference our work makes, and how we can improve our services, support and activities.
Whether you have worked with us for many years, recently connected with us, or have never used our services, your views matter. We are particularly interested in understanding what supports professionals in their work, as well as any barriers that may prevent engagement with the Huntington's Disease Association. Your feedback is important and will help shape our future work.
The survey should take approximately 10-15 minutes to complete.

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1. What best describes your role

Please select all that apply. (Required.)

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2. How long have you worked with people or families affected by Huntington's disease? (Required.)

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3. Which area do you mainly work in? (Required.)

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4. Which county do you live in?

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5. How did you first hear about the Huntington's Disease Association? (Required.)

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6. How long have you been connected with the Huntington's Disease Association? (Required.)

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7. Which Huntington's Disease Association services, activities or resources have you used or engaged with?

Please select all that apply. (Required.)

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8. How often do you currently engage with the following? (Required.)

  Weekly Monthly A few times a year Rarely Never N/A
Specialist Adviser service (SHDAs)
Youth Service (HDYES)
Training
Website
Information resources
Webinars or online events
Social media
Policy and influencing campaigns
Fundraising activities

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9. What affects how often you engage with the Huntington's Disease Association? (Required.)

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10. How would you rate the Huntington's Disease Association's communications in keeping you up to date with the work of the charity and other developments relevant to Huntington's disease? (Required.)

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11. What could we do to improve how we communicate with you to keep you up to date with the work of the charity and other areas that are relevant to Huntington’s disease?

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12. Thinking about your experience with the Huntington's Disease Association, please indicate how much you agree or disagree with the following statements. (Required.)

  Strongly agree Agree Neither agree no disagree Disagree Strongly disagree
The Huntington's Disease Association provides information that is useful in my role
I have a better understanding of Huntington's disease because of the Huntington's Disease Association
The Huntington's Disease Association helps me support people and families affected by Huntington's disease more effectively
I feel more confident supporting people affected by Huntington's disease because of the Huntington's Disease Association
The Specialist Huntington's Disease Adviser service adds value to people and families affected by Huntington's disease
The Huntington's Disease Association is a trusted source of expertise and support
The Huntington's Disease Association effectively represents and raises awareness of issues affecting people impacted by Huntington's disease
The Huntington's Disease Association helps improve knowledge and understanding of Huntington's disease amongst professionals

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13. Can you give any examples of how the Huntington’s Disease Association has helped you in your professional role?

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14. How likely are you to recommend the Huntington's Disease Association to someone affected by Huntington's disease? (Required.)

0 10
Clear
i We adjusted the number you entered based on the slider’s scale.

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15. How likely are you to recommend the Huntington's Disease Association to a colleague? (Required.)

0 10
Clear
i We adjusted the number you entered based on the slider’s scale.

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16. What is the biggest challenge you face when supporting people and families affected by Huntington's disease?

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17. What additional support, resources or information would help you address this challenge?

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18. Which of the following do you think should be the Huntington's Disease Association's highest priorities over the next 1-3 years?

Please select up to three. (Required.)

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19. Looking ahead, what support, information or resources would help you better support people and families affected by Huntington's disease?

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20. Are there services, activities or resources the Huntington's Disease Association should develop for professionals in the future?

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21. What does the Huntington's Disease Association do particularly well?

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22. What could the Huntington's Disease Association do better?

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23. Is there anything the Huntington's Disease Association should stop doing, reduce, or approach differently?

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24. Is there anything else you would like to tell us about?

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25. Would you be willing to take part in focus groups about Huntington's Disease Association services and activities? (Required.)

T