Support Group Survey

Support Groups--We want your input on how to make them better!

Support groups are all about you and we want to know what you think! Our goal is to make them more effective for you. Your input is important! Thank you!

Please take a few minutes to answer the following questions about support group topics, frequency, and groups. The questions marked with a red asterisk are required.

*1.Which type of group would you be most likely to attend?(Required.)

Groups for HD positive people only.

Groups for people at risk only.

Groups for caregivers, families, and friends of people with HD only.

Open groups for everyone affected by HD--people with HD, those at risk, caregivers, families, and friends.

*2.Please check support group topics you would be interested in.(Required.)

HD educational information

Disability

Exercise and HD

Challenges in obtaining care and how to overcome them

Local and community resources

At-risk issues and support

Caregiving issues and support

Being HD positive issues and support

Mental health issues

Clinical trials

Health care for people with HD

Financial planning

Talking to your children about HD

Guest speakers

HD and wellness (i.e nutrition, yoga, meditation)

Driving and HD

Other (please specify)

*3.What type of support group would you be most likely to participate in? Check all that apply.(Required.)

In person support group

Virtual support group--statewide

Virtual support group--regional

Blended support group--a combination of some virtual support groups and some in person support groups

I would not participate in any kind of support group.

Other (please specify)

*4.What time of the day would you prefer the support group to meet?(Required.)

Afternoon (example: 1-3 PM or 3-5 PM)

Late Afternoon-Early Evening (example: 5-7 PM)

Evening (example: 7-9 PM)

Morning (9-11 AM)

Other (please specify)

*5.How long should a support group last? (Required.)

1 hour

1 1/2 hours

2 hours

2 1/2 hours

*6.How often should support groups be held? (Required.)

Monthly

Every other month

Every 3 months

7.Do you currently participate in a support group?

If not, why don't you participate in a support group?

8.If you don't usually attend, what keeps you from attending a support group?

9.Is there anything we can do to improve your support group experience?

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