The ARM Foundation for Cell & Gene Medicine has been asked to build an online information hub of technical information/resources for journalists.

The stated goals are to:
  • Improve access to accurate, up-to-date information regarding cell therapy, gene therapy, gene editing, tissue engineering, and regenerative medicine.
  • Improve journalists’ access to technology leaders, especially leading Primary Investigators and subject experts.
  • Provide continually updated, scientifically vetted graphics and B-roll that can be downloaded for editorial use.
Your answers to this survey will help us to
  • Craft the best list of expert sources
  • Prepare those sources to be contacted in the ways you need
  • Prepare a resource section with information you need
  • Remove obstacles to reporting
  • Focus webinars and resources on topics you select
Please complete the survey with as much detail as you can provide.  The survey will take about 20 minutes to complete.

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* 1. Where do you go now to get accurate background information on cell and gene therapy, cell and gene medicine, precision medicine, and/or regenerative medicine?

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* 2. What (related) topics do you wish you understood better?

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* 3. What is your biggest obstacle to covering cell and gene therapy?

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* 4. What are the most challenging news items facing you as you prepare for Q1 2020?

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* 5. What are the most challenging technologies you cover?

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* 6. Which topics have you addressed that have stimulated your audience to challenge the accuracy or register concern about the science?

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* 7. Which topics have generated the greatest interest?

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* 8. On average, how long does it take you to obtain an interview with a desired source at an academic center/university?

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* 9. On average, how long does it take you to obtain an interview with a desired source at a government agency or a research institute?

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* 10. On average, how long does it take you to obtain an interview with a desired source at a biotechnology firm?

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* 11. On average, how long does it take you to obtain an interview with a patient advocate?

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* 12. What would you like to change about the process of getting to a researcher for an interview? How would you design that process if you could do so?

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* 13. What kinds of information on cell and gene therapy would make reporting easier?

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* 14. Would you like to be assisted in fact-checking stories? If yes, how can we best serve you to accomplish that?

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* 15. Would it be helpful to have an ombudsman within the ARM Foundation for Cell & Gene Medicine?

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* 16. Which scientific terms/usage seem to need clarification?

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* 17. Which terms seem to have different definitions throughout industry and, thus, are more challenging to discuss?

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* 18. Which content do you most prefer to accompany your cell and gene therapy reporting? (1 for most preferred, 8 for least)

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* 19. What regulatory topics do you find most challenging to investigate?

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* 20. We are considering providing periodic online press panels, using a Webinar format, where up to three topic experts address a current news item and then journalists ask questions.  We wonder if this would be a useful way to improve expert source access.

  Very Likely Somewhat Likely Undecided Unlikely Very Unlikely
Would this be valuable to you?
Would you be willing to help us determine which current news item(s) we should address?
Would you be willing to help us determine experts to invite to be panelists?
Would you be willing to help us ensure we provide what you need in a format that works for you?
Would you be willing to serve as an advisor, helping us remain objective, accurate, and valuable as a journalists’ research resource?

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* 21. One of our objectives is to ensure background content is conveniently available. What resources would be most important to find on the website and be able to review within five minutes?

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* 22. Would you be willing/able to serve on a journalists’ advisory panel for this website-based asset?

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* 23. If you are willing to assist us in planning and critiquing this portal, please provide your email address.

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