Science Briefings & Information Portal: Journalist Survey

The ARM Foundation for Cell & Gene Medicine has been asked to build an online information hub of technical information/resources for journalists.

The stated goals are to:

Improve access to accurate, up-to-date information regarding cell therapy, gene therapy, gene editing, tissue engineering, and regenerative medicine.

Improve journalists’ access to technology leaders, especially leading Primary Investigators and subject experts.

Provide continually updated, scientifically vetted graphics and B-roll that can be downloaded for editorial use.

Your answers to this survey will help us to

Craft the best list of expert sources

Prepare those sources to be contacted in the ways you need

Prepare a resource section with information you need

Remove obstacles to reporting

Focus webinars and resources on topics you select

Please complete the survey with as much detail as you can provide. The survey will take about 20 minutes to complete.

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* 1. Where do you go now to get accurate background information on cell and gene therapy, cell and gene medicine, precision medicine, and/or regenerative medicine?

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* 2. What (related) topics do you wish you understood better?

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* 3. What is your biggest obstacle to covering cell and gene therapy?

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* 4. What are the most challenging news items facing you as you prepare for Q1 2020?

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* 5. What are the most challenging technologies you cover?

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* 6. Which topics have you addressed that have stimulated your audience to challenge the accuracy or register concern about the science?

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* 7. Which topics have generated the greatest interest?

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* 8. On average, how long does it take you to obtain an interview with a desired source at an academic center/university?

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* 9. On average, how long does it take you to obtain an interview with a desired source at a government agency or a research institute?

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* 10. On average, how long does it take you to obtain an interview with a desired source at a biotechnology firm?

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* 11. On average, how long does it take you to obtain an interview with a patient advocate?

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* 12. What would you like to change about the process of getting to a researcher for an interview? How would you design that process if you could do so?

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* 13. What kinds of information on cell and gene therapy would make reporting easier?

Subject backgrounders;

Therapeutic information that is targeted for the general public as much of the information is technobabble;

Technology information that is targeted for the general public as much of the information is technobabble;

Therapeutic information that is targeted for healthcare professionals or scientifically educated individuals as most information I receive is too sophomoric;

Directory of companies/organizations/institutions involved in research and development of therapies with links to key areas of their websites;

List of approved treatments with links to prescribing information and product website;

Directory of patient advocacy organizations, organized by disease/condition;

Directory of qualified (expert) sources by subject area and affiliation;

Clinical trials by disease/condition;

Clinical trials by country/region;

Statistical information.

Other (please specify)

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* 14. Would you like to be assisted in fact-checking stories? If yes, how can we best serve you to accomplish that?

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* 15. Would it be helpful to have an ombudsman within the ARM Foundation for Cell & Gene Medicine?

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* 16. Which scientific terms/usage seem to need clarification?

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* 17. Which terms seem to have different definitions throughout industry and, thus, are more challenging to discuss?

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* 18. Which content do you most prefer to accompany your cell and gene therapy reporting? (1 for most preferred, 8 for least)

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* 19. What regulatory topics do you find most challenging to investigate?

EU Regulatory System

US Regulatory System

Preclinical

Clinical Trial Oversight

Proof of Concept Testing

Manufacturing and Control

Keeping up with proposed guidance

Legislation

Orphan Drug Designation

Other (please specify)

Question Title

* 20. We are considering providing periodic online press panels, using a Webinar format, where up to three topic experts address a current news item and then journalists ask questions. We wonder if this would be a useful way to improve expert source access.

	Very Likely	Somewhat Likely	Undecided	Unlikely	Very Unlikely
Would this be valuable to you?	Would this be valuable to you? Very Likely	Would this be valuable to you? Somewhat Likely	Would this be valuable to you? Undecided	Would this be valuable to you? Unlikely	Would this be valuable to you? Very Unlikely
Would you be willing to help us determine which current news item(s) we should address?	Would you be willing to help us determine which current news item(s) we should address? Very Likely	Would you be willing to help us determine which current news item(s) we should address? Somewhat Likely	Would you be willing to help us determine which current news item(s) we should address? Undecided	Would you be willing to help us determine which current news item(s) we should address? Unlikely	Would you be willing to help us determine which current news item(s) we should address? Very Unlikely
Would you be willing to help us determine experts to invite to be panelists?	Would you be willing to help us determine experts to invite to be panelists? Very Likely	Would you be willing to help us determine experts to invite to be panelists? Somewhat Likely	Would you be willing to help us determine experts to invite to be panelists? Undecided	Would you be willing to help us determine experts to invite to be panelists? Unlikely	Would you be willing to help us determine experts to invite to be panelists? Very Unlikely
Would you be willing to help us ensure we provide what you need in a format that works for you?	Would you be willing to help us ensure we provide what you need in a format that works for you? Very Likely	Would you be willing to help us ensure we provide what you need in a format that works for you? Somewhat Likely	Would you be willing to help us ensure we provide what you need in a format that works for you? Undecided	Would you be willing to help us ensure we provide what you need in a format that works for you? Unlikely	Would you be willing to help us ensure we provide what you need in a format that works for you? Very Unlikely
Would you be willing to serve as an advisor, helping us remain objective, accurate, and valuable as a journalists’ research resource?	Would you be willing to serve as an advisor, helping us remain objective, accurate, and valuable as a journalists’ research resource? Very Likely	Would you be willing to serve as an advisor, helping us remain objective, accurate, and valuable as a journalists’ research resource? Somewhat Likely	Would you be willing to serve as an advisor, helping us remain objective, accurate, and valuable as a journalists’ research resource? Undecided	Would you be willing to serve as an advisor, helping us remain objective, accurate, and valuable as a journalists’ research resource? Unlikely	Would you be willing to serve as an advisor, helping us remain objective, accurate, and valuable as a journalists’ research resource? Very Unlikely

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* 21. One of our objectives is to ensure background content is conveniently available. What resources would be most important to find on the website and be able to review within five minutes?

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* 22. Would you be willing/able to serve on a journalists’ advisory panel for this website-based asset?

Yes

Science Briefings & Information Portal: Journalist Survey

Question Title

* 1. Where do you go now to get accurate background information on cell and gene therapy, cell and gene medicine, precision medicine, and/or regenerative medicine?

Question Title

* 2. What (related) topics do you wish you understood better?

Question Title

* 3. What is your biggest obstacle to covering cell and gene therapy?

Question Title

* 4. What are the most challenging news items facing you as you prepare for Q1 2020?

Question Title

* 5. What are the most challenging technologies you cover?

Question Title

* 6. Which topics have you addressed that have stimulated your audience to challenge the accuracy or register concern about the science?

Question Title

* 7. Which topics have generated the greatest interest?

Question Title

* 8. On average, how long does it take you to obtain an interview with a desired source at an academic center/university?

Question Title

* 9. On average, how long does it take you to obtain an interview with a desired source at a government agency or a research institute?

Question Title

* 10. On average, how long does it take you to obtain an interview with a desired source at a biotechnology firm?

Question Title

* 11. On average, how long does it take you to obtain an interview with a patient advocate?

Question Title

* 12. What would you like to change about the process of getting to a researcher for an interview? How would you design that process if you could do so?

Question Title

* 13. What kinds of information on cell and gene therapy would make reporting easier?

Question Title

* 14. Would you like to be assisted in fact-checking stories? If yes, how can we best serve you to accomplish that?

Question Title

* 15. Would it be helpful to have an ombudsman within the ARM Foundation for Cell & Gene Medicine?

Question Title

* 16. Which scientific terms/usage seem to need clarification?

Question Title

* 17. Which terms seem to have different definitions throughout industry and, thus, are more challenging to discuss?

Question Title

* 18. Which content do you most prefer to accompany your cell and gene therapy reporting? (1 for most preferred, 8 for least)

Question Title

* 19. What regulatory topics do you find most challenging to investigate?

Question Title

* 20. We are considering providing periodic online press panels, using a Webinar format, where up to three topic experts address a current news item and then journalists ask questions. We wonder if this would be a useful way to improve expert source access.

Question Title

* 21. One of our objectives is to ensure background content is conveniently available. What resources would be most important to find on the website and be able to review within five minutes?

Question Title

* 22. Would you be willing/able to serve on a journalists’ advisory panel for this website-based asset?

Question Title

* 23. If you are willing to assist us in planning and critiquing this portal, please provide your email address.