The Patient Outcomes Research Group is conducting interviews and focus groups about how living with VWD impacts your quality of life. The purpose of this study is to is to adapt and validate the PROBE questionnaire for people with VWD, creating a reliable, standardized patient-reported outcome tool to assess treatment burden, health-related quality of life, and other patient-important outcomes.
If you decide to participate, you will complete a 60-minute interview alone or with a small group (called a focus group) either in person or via video conference. You will be reimbursed $100 USD or equivalent in the form of a gift card.
If you have any questions, please call the study team by emailing eclearfield@ipaltd.com.
Please answer the following questions to see if you are eligible to participate.
If you decide to participate, you will complete a 60-minute interview alone or with a small group (called a focus group) either in person or via video conference. You will be reimbursed $100 USD or equivalent in the form of a gift card.
If you have any questions, please call the study team by emailing eclearfield@ipaltd.com.
Please answer the following questions to see if you are eligible to participate.