International Survey of Peer Support Groups for DSD |
Dear Colleague
On behalf of DSDnet we would like to perform a survey of peer support and advocacy organisations for people with DSD.
The purpose of this survey is to understand the process of how peer support and advocacy organisations provide their services and the extent of variation that currently exists. We also aim to explore the level of communication with healthcare professionals and the collaboration with other peer support groups.
We are also keen to identify areas of research and service development that should be prioritised for the future and in the current survey we want to understand this from the perspective of parents, advocacy groups and individuals with DSD.
This survey is being performed by Working Group 4 of DSDnet. The group consists of the following members:
Faisal Ahmed, UK
Arianne B. Dessens, Netherlands
Jillian Bryce, UK
Ira Haraldsen, Norway
Violeta Iotova, Bulgaria
Maciej Krawczynski, Poland
Andreas Kyriakou, Cyprus
Agneta Nordenskjöld, Sweden
Marta Rozas, Spain
Caroline Sanders, UK
and further details of their remit can be obtained from www.dsdnet.eu
We believe that the survey should take no more than 30 minutes of your time. If you feel that somebody else in your team is better positioned to complete this survey, please forward this email to them and copy Andreas.Kyriakou@glasgow.ac.uk. To enable us to contact you again we do need you to supply your contact details.
We would really appreciate your response by the 7th September 2015.
On behalf of DSDnet we would like to perform a survey of peer support and advocacy organisations for people with DSD.
The purpose of this survey is to understand the process of how peer support and advocacy organisations provide their services and the extent of variation that currently exists. We also aim to explore the level of communication with healthcare professionals and the collaboration with other peer support groups.
We are also keen to identify areas of research and service development that should be prioritised for the future and in the current survey we want to understand this from the perspective of parents, advocacy groups and individuals with DSD.
This survey is being performed by Working Group 4 of DSDnet. The group consists of the following members:
Faisal Ahmed, UK
Arianne B. Dessens, Netherlands
Jillian Bryce, UK
Ira Haraldsen, Norway
Violeta Iotova, Bulgaria
Maciej Krawczynski, Poland
Andreas Kyriakou, Cyprus
Agneta Nordenskjöld, Sweden
Marta Rozas, Spain
Caroline Sanders, UK
and further details of their remit can be obtained from www.dsdnet.eu
We believe that the survey should take no more than 30 minutes of your time. If you feel that somebody else in your team is better positioned to complete this survey, please forward this email to them and copy Andreas.Kyriakou@glasgow.ac.uk. To enable us to contact you again we do need you to supply your contact details.
We would really appreciate your response by the 7th September 2015.