Speaker Details

All talks take place on a Sunday at 3pm ET 


June 30, 2024 -3pm ET - The Sudden Arrhythmia Death Syndrome (SADS) Foundation
Join us for an informative session led by professionals from the SADS Foundation titled Resources and Cardiac Evaluation after a Sudden, Unexplained Loss. Heather MacLeod, a genetic counselor, and Genevie Echols, our Family Support Director, will expertly navigate you through the essential steps of obtaining a cardiac evaluation for family members following a sudden, unexplained loss. Gain valuable insights into the support and resources offered by SADS to help you through this challenging journey.
August 18, 2024 - 3pm ET - Carrie Brody                           
Carrie Brody, an experienced educator whose personal journey includes the tragic loss of her son Seth to SUDC, will explore the five essential needs of the griever, as identified by David Kessler in her workshop titled: "Moving Forward and Through Grief with Movement."  Carrie will delve into how meeting our needs can cultivate healing, hope, and meaning, emphasizing the importance of cherishing love over pain in the grief journey.   

Attendees can anticipate practical insights on navigating grief and life simultaneously, along with grief movement techniques shared by Carrie. Rooted in the transformative power of movement we hope you’ll join us for this healing session.

December 8, 2024 - 3pm ET/8pm UK - Jenni Thomas OBE
Join Jenni Thomas, a distinguished professional with over 50 years in the NHS, for a profound session titled "Beyond Sorrow - Nurturing Families in Times of Child Loss." As a pioneer in bereavement support, Jenni established the first Paediatric and Maternity Bereavement Counsellor role in the NHS in 1985, influencing similar roles nationwide. The founder of The Child Bereavement Trust (now Child Bereavement UK), she has been a crucial support for SUDC-affected families, offering 1-1 counseling and organizing bereavement retreats.

In this session, Jenni delves into the nurturing needs of children after a traumatic loss, emphasizing the importance of timely support for all family members, especially siblings who can be overlooked. Drawing on her extensive experience, she addresses the challenges parents face in understanding evolving grief needs at different developmental stages. Jenni explores how mothers and fathers may grieve differently, based on the research of Stroebe and Shutt's 'Dual Process of Loss,' highlighting the importance of supporting them individually and as couples. Don't miss this opportunity to gain insights into supporting families in times of child loss, as Jenni shares valuable lessons from her extensive career, illustrating what families have found most valuable both in the immediate aftermath and later on.

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* 1. First Name

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* 2. Last Name

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* 3. What is your address?

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* 4. What is your phone number?

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* 5. What is your email address?

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* 6. What event are you registering for?

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* 7. What is your affiliation?

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* 8. Would you like to join the SUDC Foundation ENews?

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* 9. How did you hear about this event?

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