Outside United States Vascular Anomalies Special Interest Group Survey: Cancer and Benign Tumors in Klippel-Trenaunay Syndrome

Use this survey if you live outside USA. Please help complete this study. Results will be published.

All members in our group either have a capillary, lymphatic, venous malformation, possibly with arterial involvement, or serve as caretaker for someone with one of these conditions. We are working with The Vascular Anomalies Special Interest Group (SIG), a group of pediatric hematologist-oncologists (blood disorder and cancer specialists) who are interested in learning whether people with KT and related diagnoses are at risk for particular problems. We are hoping you will be willing to answer a few brief questions relating to your/your family member's malformations and other problems which may or may not be related. We are particularly interested in cancer and benign tumor risk. The questions should only take a few minutes to answer. This is research, and results hopefully will be published. No publications will include your names or other information which would allow a reader to identify you or any of the participants.

Question Title

* 1. Are you the person with a combined vascular malformation?

Yes

No, I am a parent or guardian

No, I am a spouse

No, I am a doctor

Other (please specify)

Question Title

* 2. Please tell us the gender and birth year of the person with K-T (capillary lymphatic venous malformation with overgrowth)

male

female

Year of birth:

Question Title

* 3. What parts of your body are directly affected by your K-T? Select all areas that apply. (If you are not the individual with K-T, please complete the rest of this survey with the K-T member).

	Overgrowth	Atrophy (undersized)	Pain	Port wine stain	Vascular involvement	Lymphatic involvement
Left leg	Left leg Overgrowth	Left leg Atrophy (undersized)	Left leg Pain	Left leg Port wine stain	Left leg Vascular involvement	Left leg Lymphatic involvement
Left trunk - below navel (pelvis, lower abdomen, lower back)	Left trunk - below navel (pelvis, lower abdomen, lower back) Overgrowth	Left trunk - below navel (pelvis, lower abdomen, lower back) Atrophy (undersized)	Left trunk - below navel (pelvis, lower abdomen, lower back) Pain	Left trunk - below navel (pelvis, lower abdomen, lower back) Port wine stain	Left trunk - below navel (pelvis, lower abdomen, lower back) Vascular involvement	Left trunk - below navel (pelvis, lower abdomen, lower back) Lymphatic involvement
Left trunk - above navel (chest, upper abdomen, upper back)	Left trunk - above navel (chest, upper abdomen, upper back) Overgrowth	Left trunk - above navel (chest, upper abdomen, upper back) Atrophy (undersized)	Left trunk - above navel (chest, upper abdomen, upper back) Pain	Left trunk - above navel (chest, upper abdomen, upper back) Port wine stain	Left trunk - above navel (chest, upper abdomen, upper back) Vascular involvement	Left trunk - above navel (chest, upper abdomen, upper back) Lymphatic involvement
Left arm	Left arm Overgrowth	Left arm Atrophy (undersized)	Left arm Pain	Left arm Port wine stain	Left arm Vascular involvement	Left arm Lymphatic involvement
Left hand	Left hand Overgrowth	Left hand Atrophy (undersized)	Left hand Pain	Left hand Port wine stain	Left hand Vascular involvement	Left hand Lymphatic involvement
Left pelvis	Left pelvis Overgrowth	Left pelvis Atrophy (undersized)	Left pelvis Pain	Left pelvis Port wine stain	Left pelvis Vascular involvement	Left pelvis Lymphatic involvement
Left foot	Left foot Overgrowth	Left foot Atrophy (undersized)	Left foot Pain	Left foot Port wine stain	Left foot Vascular involvement	Left foot Lymphatic involvement
Genital - minor	Genital - minor Overgrowth	Genital - minor Atrophy (undersized)	Genital - minor Pain	Genital - minor Port wine stain	Genital - minor Vascular involvement	Genital - minor Lymphatic involvement
Genital - not minor	Genital - not minor Overgrowth	Genital - not minor Atrophy (undersized)	Genital - not minor Pain	Genital - not minor Port wine stain	Genital - not minor Vascular involvement	Genital - not minor Lymphatic involvement
Head	Head Overgrowth	Head Atrophy (undersized)	Head Pain	Head Port wine stain	Head Vascular involvement	Head Lymphatic involvement
Brain	Brain Overgrowth	Brain Atrophy (undersized)	Brain Pain	Brain Port wine stain	Brain Vascular involvement	Brain Lymphatic involvement
Neck	Neck Overgrowth	Neck Atrophy (undersized)	Neck Pain	Neck Port wine stain	Neck Vascular involvement	Neck Lymphatic involvement
Spine	Spine Overgrowth	Spine Atrophy (undersized)	Spine Pain	Spine Port wine stain	Spine Vascular involvement	Spine Lymphatic involvement
Right leg	Right leg Overgrowth	Right leg Atrophy (undersized)	Right leg Pain	Right leg Port wine stain	Right leg Vascular involvement	Right leg Lymphatic involvement
Right trunk - below navel (pelvis, lower abdomen, lower back)	Right trunk - below navel (pelvis, lower abdomen, lower back) Overgrowth	Right trunk - below navel (pelvis, lower abdomen, lower back) Atrophy (undersized)	Right trunk - below navel (pelvis, lower abdomen, lower back) Pain	Right trunk - below navel (pelvis, lower abdomen, lower back) Port wine stain	Right trunk - below navel (pelvis, lower abdomen, lower back) Vascular involvement	Right trunk - below navel (pelvis, lower abdomen, lower back) Lymphatic involvement
Right trunk - above navel (chest, upper abdomen, upper back)	Right trunk - above navel (chest, upper abdomen, upper back) Overgrowth	Right trunk - above navel (chest, upper abdomen, upper back) Atrophy (undersized)	Right trunk - above navel (chest, upper abdomen, upper back) Pain	Right trunk - above navel (chest, upper abdomen, upper back) Port wine stain	Right trunk - above navel (chest, upper abdomen, upper back) Vascular involvement	Right trunk - above navel (chest, upper abdomen, upper back) Lymphatic involvement
Right arm	Right arm Overgrowth	Right arm Atrophy (undersized)	Right arm Pain	Right arm Port wine stain	Right arm Vascular involvement	Right arm Lymphatic involvement
Right hand	Right hand Overgrowth	Right hand Atrophy (undersized)	Right hand Pain	Right hand Port wine stain	Right hand Vascular involvement	Right hand Lymphatic involvement
Right pelvis	Right pelvis Overgrowth	Right pelvis Atrophy (undersized)	Right pelvis Pain	Right pelvis Port wine stain	Right pelvis Vascular involvement	Right pelvis Lymphatic involvement
Right foot	Right foot Overgrowth	Right foot Atrophy (undersized)	Right foot Pain	Right foot Port wine stain	Right foot Vascular involvement	Right foot Lymphatic involvement
Internal organ (kidney, spleen, liver, ovaries, lungs, bladder, colon, other)	Internal organ (kidney, spleen, liver, ovaries, lungs, bladder, colon, other) Overgrowth	Internal organ (kidney, spleen, liver, ovaries, lungs, bladder, colon, other) Atrophy (undersized)	Internal organ (kidney, spleen, liver, ovaries, lungs, bladder, colon, other) Pain	Internal organ (kidney, spleen, liver, ovaries, lungs, bladder, colon, other) Port wine stain	Internal organ (kidney, spleen, liver, ovaries, lungs, bladder, colon, other) Vascular involvement	Internal organ (kidney, spleen, liver, ovaries, lungs, bladder, colon, other) Lymphatic involvement
Face	Face Overgrowth	Face Atrophy (undersized)	Face Pain	Face Port wine stain	Face Vascular involvement	Face Lymphatic involvement
Mouth/oral (gums, tongue)	Mouth/oral (gums, tongue) Overgrowth	Mouth/oral (gums, tongue) Atrophy (undersized)	Mouth/oral (gums, tongue) Pain	Mouth/oral (gums, tongue) Port wine stain	Mouth/oral (gums, tongue) Vascular involvement	Mouth/oral (gums, tongue) Lymphatic involvement
Eyes	Eyes Overgrowth	Eyes Atrophy (undersized)	Eyes Pain	Eyes Port wine stain	Eyes Vascular involvement	Eyes Lymphatic involvement

Other (please specify)

Question Title

* 4. Please check all conditions that apply, and when they appeared. Share other symptoms not listed that you think might be related to your CLVM.

	present at birth	appeared before puberty	appeared during puberty	appeared age 20-30	appeared age 30-40	appeared age 50 and over
hypertrophy (overgrowth)	hypertrophy (overgrowth) present at birth	hypertrophy (overgrowth) appeared before puberty	hypertrophy (overgrowth) appeared during puberty	hypertrophy (overgrowth) appeared age 20-30	hypertrophy (overgrowth) appeared age 30-40	hypertrophy (overgrowth) appeared age 50 and over
hypotrophy (undergrowth)	hypotrophy (undergrowth) present at birth	hypotrophy (undergrowth) appeared before puberty	hypotrophy (undergrowth) appeared during puberty	hypotrophy (undergrowth) appeared age 20-30	hypotrophy (undergrowth) appeared age 30-40	hypotrophy (undergrowth) appeared age 50 and over
dark port wine stain	dark port wine stain present at birth	dark port wine stain appeared before puberty	dark port wine stain appeared during puberty	dark port wine stain appeared age 20-30	dark port wine stain appeared age 30-40	dark port wine stain appeared age 50 and over
light port wine stain	light port wine stain present at birth	light port wine stain appeared before puberty	light port wine stain appeared during puberty	light port wine stain appeared age 20-30	light port wine stain appeared age 30-40	light port wine stain appeared age 50 and over
macrodactyly (abnormally large toes or fingers)	macrodactyly (abnormally large toes or fingers) present at birth	macrodactyly (abnormally large toes or fingers) appeared before puberty	macrodactyly (abnormally large toes or fingers) appeared during puberty	macrodactyly (abnormally large toes or fingers) appeared age 20-30	macrodactyly (abnormally large toes or fingers) appeared age 30-40	macrodactyly (abnormally large toes or fingers) appeared age 50 and over
syndactyly (fused toes or fingers)	syndactyly (fused toes or fingers) present at birth	syndactyly (fused toes or fingers) appeared before puberty	syndactyly (fused toes or fingers) appeared during puberty	syndactyly (fused toes or fingers) appeared age 20-30	syndactyly (fused toes or fingers) appeared age 30-40	syndactyly (fused toes or fingers) appeared age 50 and over
polydactyly (extra toe or finger)	polydactyly (extra toe or finger) present at birth	polydactyly (extra toe or finger) appeared before puberty	polydactyly (extra toe or finger) appeared during puberty	polydactyly (extra toe or finger) appeared age 20-30	polydactyly (extra toe or finger) appeared age 30-40	polydactyly (extra toe or finger) appeared age 50 and over
limb length discrepancy - affected limb greater than 2.5 cm longer	limb length discrepancy - affected limb greater than 2.5 cm longer present at birth	limb length discrepancy - affected limb greater than 2.5 cm longer appeared before puberty	limb length discrepancy - affected limb greater than 2.5 cm longer appeared during puberty	limb length discrepancy - affected limb greater than 2.5 cm longer appeared age 20-30	limb length discrepancy - affected limb greater than 2.5 cm longer appeared age 30-40	limb length discrepancy - affected limb greater than 2.5 cm longer appeared age 50 and over
limb length discrepancy - affected limb less than 2.5 cm longer	limb length discrepancy - affected limb less than 2.5 cm longer present at birth	limb length discrepancy - affected limb less than 2.5 cm longer appeared before puberty	limb length discrepancy - affected limb less than 2.5 cm longer appeared during puberty	limb length discrepancy - affected limb less than 2.5 cm longer appeared age 20-30	limb length discrepancy - affected limb less than 2.5 cm longer appeared age 30-40	limb length discrepancy - affected limb less than 2.5 cm longer appeared age 50 and over
lymphatic blebs (small bubble-like vesicles or "blisters" filled with clear or bloody fluid)	lymphatic blebs (small bubble-like vesicles or "blisters" filled with clear or bloody fluid) present at birth	lymphatic blebs (small bubble-like vesicles or "blisters" filled with clear or bloody fluid) appeared before puberty	lymphatic blebs (small bubble-like vesicles or "blisters" filled with clear or bloody fluid) appeared during puberty	lymphatic blebs (small bubble-like vesicles or "blisters" filled with clear or bloody fluid) appeared age 20-30	lymphatic blebs (small bubble-like vesicles or "blisters" filled with clear or bloody fluid) appeared age 30-40	lymphatic blebs (small bubble-like vesicles or "blisters" filled with clear or bloody fluid) appeared age 50 and over
cellulitis (bacterial infection involving the skin and underlying tissues	cellulitis (bacterial infection involving the skin and underlying tissues present at birth	cellulitis (bacterial infection involving the skin and underlying tissues appeared before puberty	cellulitis (bacterial infection involving the skin and underlying tissues appeared during puberty	cellulitis (bacterial infection involving the skin and underlying tissues appeared age 20-30	cellulitis (bacterial infection involving the skin and underlying tissues appeared age 30-40	cellulitis (bacterial infection involving the skin and underlying tissues appeared age 50 and over
frequent infection	frequent infection present at birth	frequent infection appeared before puberty	frequent infection appeared during puberty	frequent infection appeared age 20-30	frequent infection appeared age 30-40	frequent infection appeared age 50 and over
anemia (red blood cell count/hemoglobin lower than normal)	anemia (red blood cell count/hemoglobin lower than normal) present at birth	anemia (red blood cell count/hemoglobin lower than normal) appeared before puberty	anemia (red blood cell count/hemoglobin lower than normal) appeared during puberty	anemia (red blood cell count/hemoglobin lower than normal) appeared age 20-30	anemia (red blood cell count/hemoglobin lower than normal) appeared age 30-40	anemia (red blood cell count/hemoglobin lower than normal) appeared age 50 and over
blood in urine (hematuria)	blood in urine (hematuria) present at birth	blood in urine (hematuria) appeared before puberty	blood in urine (hematuria) appeared during puberty	blood in urine (hematuria) appeared age 20-30	blood in urine (hematuria) appeared age 30-40	blood in urine (hematuria) appeared age 50 and over
rectal bleeding	rectal bleeding present at birth	rectal bleeding appeared before puberty	rectal bleeding appeared during puberty	rectal bleeding appeared age 20-30	rectal bleeding appeared age 30-40	rectal bleeding appeared age 50 and over
vaginal bleeding (other than menses)	vaginal bleeding (other than menses) present at birth	vaginal bleeding (other than menses) appeared before puberty	vaginal bleeding (other than menses) appeared during puberty	vaginal bleeding (other than menses) appeared age 20-30	vaginal bleeding (other than menses) appeared age 30-40	vaginal bleeding (other than menses) appeared age 50 and over
restless legs	restless legs present at birth	restless legs appeared before puberty	restless legs appeared during puberty	restless legs appeared age 20-30	restless legs appeared age 30-40	restless legs appeared age 50 and over
frequent fevers unaccompanied by other symptoms	frequent fevers unaccompanied by other symptoms present at birth	frequent fevers unaccompanied by other symptoms appeared before puberty	frequent fevers unaccompanied by other symptoms appeared during puberty	frequent fevers unaccompanied by other symptoms appeared age 20-30	frequent fevers unaccompanied by other symptoms appeared age 30-40	frequent fevers unaccompanied by other symptoms appeared age 50 and over
portal hypertension (abnormally high blood pressure in the portal vein)	portal hypertension (abnormally high blood pressure in the portal vein) present at birth	portal hypertension (abnormally high blood pressure in the portal vein) appeared before puberty	portal hypertension (abnormally high blood pressure in the portal vein) appeared during puberty	portal hypertension (abnormally high blood pressure in the portal vein) appeared age 20-30	portal hypertension (abnormally high blood pressure in the portal vein) appeared age 30-40	portal hypertension (abnormally high blood pressure in the portal vein) appeared age 50 and over
elevated heart rate	elevated heart rate present at birth	elevated heart rate appeared before puberty	elevated heart rate appeared during puberty	elevated heart rate appeared age 20-30	elevated heart rate appeared age 30-40	elevated heart rate appeared age 50 and over
high blood pressure	high blood pressure present at birth	high blood pressure appeared before puberty	high blood pressure appeared during puberty	high blood pressure appeared age 20-30	high blood pressure appeared age 30-40	high blood pressure appeared age 50 and over
seizures	seizures present at birth	seizures appeared before puberty	seizures appeared during puberty	seizures appeared age 20-30	seizures appeared age 30-40	seizures appeared age 50 and over
syncope (fainting or dizziness)	syncope (fainting or dizziness) present at birth	syncope (fainting or dizziness) appeared before puberty	syncope (fainting or dizziness) appeared during puberty	syncope (fainting or dizziness) appeared age 20-30	syncope (fainting or dizziness) appeared age 30-40	syncope (fainting or dizziness) appeared age 50 and over
pulmonary emboli	pulmonary emboli present at birth	pulmonary emboli appeared before puberty	pulmonary emboli appeared during puberty	pulmonary emboli appeared age 20-30	pulmonary emboli appeared age 30-40	pulmonary emboli appeared age 50 and over
affected limb is warmer	affected limb is warmer present at birth	affected limb is warmer appeared before puberty	affected limb is warmer appeared during puberty	affected limb is warmer appeared age 20-30	affected limb is warmer appeared age 30-40	affected limb is warmer appeared age 50 and over
affected limb is colder	affected limb is colder present at birth	affected limb is colder appeared before puberty	affected limb is colder appeared during puberty	affected limb is colder appeared age 20-30	affected limb is colder appeared age 30-40	affected limb is colder appeared age 50 and over
frequent headaches	frequent headaches present at birth	frequent headaches appeared before puberty	frequent headaches appeared during puberty	frequent headaches appeared age 20-30	frequent headaches appeared age 30-40	frequent headaches appeared age 50 and over
scoliosis (curvature of the spine)	scoliosis (curvature of the spine) present at birth	scoliosis (curvature of the spine) appeared before puberty	scoliosis (curvature of the spine) appeared during puberty	scoliosis (curvature of the spine) appeared age 20-30	scoliosis (curvature of the spine) appeared age 30-40	scoliosis (curvature of the spine) appeared age 50 and over
lymphedema	lymphedema present at birth	lymphedema appeared before puberty	lymphedema appeared during puberty	lymphedema appeared age 20-30	lymphedema appeared age 30-40	lymphedema appeared age 50 and over
gait abnormalities (deviation from normal walking gait)	gait abnormalities (deviation from normal walking gait) present at birth	gait abnormalities (deviation from normal walking gait) appeared before puberty	gait abnormalities (deviation from normal walking gait) appeared during puberty	gait abnormalities (deviation from normal walking gait) appeared age 20-30	gait abnormalities (deviation from normal walking gait) appeared age 30-40	gait abnormalities (deviation from normal walking gait) appeared age 50 and over
hypotonia (low muscle tone)	hypotonia (low muscle tone) present at birth	hypotonia (low muscle tone) appeared before puberty	hypotonia (low muscle tone) appeared during puberty	hypotonia (low muscle tone) appeared age 20-30	hypotonia (low muscle tone) appeared age 30-40	hypotonia (low muscle tone) appeared age 50 and over
hypermobility (joints that move in excess of a normal range)	hypermobility (joints that move in excess of a normal range) present at birth	hypermobility (joints that move in excess of a normal range) appeared before puberty	hypermobility (joints that move in excess of a normal range) appeared during puberty	hypermobility (joints that move in excess of a normal range) appeared age 20-30	hypermobility (joints that move in excess of a normal range) appeared age 30-40	hypermobility (joints that move in excess of a normal range) appeared age 50 and over
joint damage	joint damage present at birth	joint damage appeared before puberty	joint damage appeared during puberty	joint damage appeared age 20-30	joint damage appeared age 30-40	joint damage appeared age 50 and over
chronic pain	chronic pain present at birth	chronic pain appeared before puberty	chronic pain appeared during puberty	chronic pain appeared age 20-30	chronic pain appeared age 30-40	chronic pain appeared age 50 and over
lipomatous mass (large fatty lump without color. Not to be confused with vascular malformation - a bluish lump of veins sometimes visible through skin.)	lipomatous mass (large fatty lump without color. Not to be confused with vascular malformation - a bluish lump of veins sometimes visible through skin.) present at birth	lipomatous mass (large fatty lump without color. Not to be confused with vascular malformation - a bluish lump of veins sometimes visible through skin.) appeared before puberty	lipomatous mass (large fatty lump without color. Not to be confused with vascular malformation - a bluish lump of veins sometimes visible through skin.) appeared during puberty	lipomatous mass (large fatty lump without color. Not to be confused with vascular malformation - a bluish lump of veins sometimes visible through skin.) appeared age 20-30	lipomatous mass (large fatty lump without color. Not to be confused with vascular malformation - a bluish lump of veins sometimes visible through skin.) appeared age 30-40	lipomatous mass (large fatty lump without color. Not to be confused with vascular malformation - a bluish lump of veins sometimes visible through skin.) appeared age 50 and over
glaucoma	glaucoma present at birth	glaucoma appeared before puberty	glaucoma appeared during puberty	glaucoma appeared age 20-30	glaucoma appeared age 30-40	glaucoma appeared age 50 and over
partial or complete paralysis	partial or complete paralysis present at birth	partial or complete paralysis appeared before puberty	partial or complete paralysis appeared during puberty	partial or complete paralysis appeared age 20-30	partial or complete paralysis appeared age 30-40	partial or complete paralysis appeared age 50 and over
muscle weakness	muscle weakness present at birth	muscle weakness appeared before puberty	muscle weakness appeared during puberty	muscle weakness appeared age 20-30	muscle weakness appeared age 30-40	muscle weakness appeared age 50 and over
partial or complete loss of sensation	partial or complete loss of sensation present at birth	partial or complete loss of sensation appeared before puberty	partial or complete loss of sensation appeared during puberty	partial or complete loss of sensation appeared age 20-30	partial or complete loss of sensation appeared age 30-40	partial or complete loss of sensation appeared age 50 and over
developmental delays	developmental delays present at birth	developmental delays appeared before puberty	developmental delays appeared during puberty	developmental delays appeared age 20-30	developmental delays appeared age 30-40	developmental delays appeared age 50 and over
cognitive decline	cognitive decline present at birth	cognitive decline appeared before puberty	cognitive decline appeared during puberty	cognitive decline appeared age 20-30	cognitive decline appeared age 30-40	cognitive decline appeared age 50 and over
decreased alertness	decreased alertness present at birth	decreased alertness appeared before puberty	decreased alertness appeared during puberty	decreased alertness appeared age 20-30	decreased alertness appeared age 30-40	decreased alertness appeared age 50 and over
basal cell skin cancer in port wine stain (rare)	basal cell skin cancer in port wine stain (rare) present at birth	basal cell skin cancer in port wine stain (rare) appeared before puberty	basal cell skin cancer in port wine stain (rare) appeared during puberty	basal cell skin cancer in port wine stain (rare) appeared age 20-30	basal cell skin cancer in port wine stain (rare) appeared age 30-40	basal cell skin cancer in port wine stain (rare) appeared age 50 and over
squamous cell cancer in port wine stain (rare)	squamous cell cancer in port wine stain (rare) present at birth	squamous cell cancer in port wine stain (rare) appeared before puberty	squamous cell cancer in port wine stain (rare) appeared during puberty	squamous cell cancer in port wine stain (rare) appeared age 20-30	squamous cell cancer in port wine stain (rare) appeared age 30-40	squamous cell cancer in port wine stain (rare) appeared age 50 and over

Other (please specify)

Question Title

* 5. What tests have been done to confirm the diagnosis? (check all that apply)

physical exam

In utero

MRI/A

angiogram

venogram

sonogram

self diagnosed

I've never officially been diagnosed

Question Title

* 6. How old were you/your family member when a malformation or overgrowth was first diagnosed?

Question Title

* 7. What kind of medical professional helps you manage your KT? Check all that apply.

none

myself

nurse practitioner

internist

family physician

pediatrician

physician's assistant

medical specialist (list specialty below)

multidisciplinary team (a group of doctors with a special interest in vascular anomalies)

lymphedema therapist

compression garment fitter

alternative medicine specialist

pain management specialist

List specialty:

Question Title

* 8. Have you ever been told you have a cancer?

Yes

Question Title

* 9. If "yes" on Q8, please answer the following:

Do you know what the diagnosis was?

How old were you when you were first diagnosed?

In what part of the body was the cancer noted?

Was it in an area of hemihypertrophy?

Was it in an area of vascular malformation?

Question Title

* 10. For your cancer, were you treated with:

surgery

chemotherapy

radiation

What is the name of the hospital where you were treated for this cancer?

Question Title

* 11. Have you ever been told you have a benign (noncancerous) tumor or lump?

Yes

Question Title

* 12. If "yes" on Q11, please answer the following:

If yes, do you know what the diagnosis was?

If yes, how old were you when you were first diagnosed?

In what part of the body was the tumor noted?

Was it in an area of hemihypertrophy?

Was it in an area of vascular malformation?

Question Title

* 13. For your benign (noncancerous) tumor or lump, were you treated with:

surgery

chemotherapy

radiation

What is the name of the hospital where you were treated for this tumor?

Question Title

* 14. We may want to re-contact some or all of you to get additional information. Please add your email address here if you are willing to have us send you a follow-up email over the next few months.