AARDA encourages you to complete our short survey on your personal experience with chronic pain. Your answers will help us better understand how to address the needs of those living with pain.

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Do you currently live with or have you ever experienced some form of chronic pain?

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Please choose the option that best describes your personal experience with chronic pain.

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What area(s) of the body do you experience pain?

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Have you been diagnosed with an autoimmune disease?

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If you have been diagnosed with an autoimmune disease, were you diagnosed by a specialist?

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Have you ever been seen by a chronic pain specialist?

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On a scale of 1 to 10, with 1 indicating no pain, and 10 indicating the most extreme pain, how would you rate the intensity of your chronic pain before the COVID-19 pandemic?

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On a scale of 1 to 10, with 1 indicating no pain, and 10 indicating the most extreme pain, how would you rate the intensity of your chronic pain now?

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When discussing pain management with your doctor, what treatment options have they recommended?

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Which chronic pain management techniques have you tried? Please select all that apply:

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Which chronic pain management techniques have worked best for you? Please select all that apply:

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How would you describe the reaction from doctors regarding your assessment of the pain you experience?

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If your pain experience is being dismissed, what do you attribute this reaction to? Please select all that apply:

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On a scale of 1 to 10, with 1 indicating not managed at all, and 10 indicating very well managed, how well is your chronic pain currently being managed?

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On a scale of 1 to 10, with 1 indicating not helpful at all, and 10 indicating very helpful, how helpful has your physician/specialist been in treating your chronic pain?

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How has your chronic pain adversely affected your daily life either now or in the past? Please select all that apply:

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How does your chronic pain make you feel? Please select all that apply:

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Have you ever received negative reactions from others when expressing concerns of the chronic pain you experience?

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Which of the following have you experienced? Please select all that apply:

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What challenges do you face in better managing your chronic pain? Please select all that apply:

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Do you experience any barriers in accessing medicines or medical care to manage your chronic pain? Please select all that apply:

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Do you have difficulty maintaining an adequate supply of prescription medication?

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Have you incurred any of the following financial burdens as a direct result of chronic pain? Please select all that apply:

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Please describe the most significant financial burdens you face in managing chronic pain.

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Please indicate which of the following concerns you have regarding your pain management?

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Would you like to receive additional information about how to manage, treat, and otherwise cope with your pain?

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Please describe what supports would help you in addressing your pain management needs.

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In your own words, please tell us about your personal experience with chronic pain. How does it affect your life? What would help you better manage your pain? What do you want others to know about your experience?

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Do you give AARDA consent to share your personal experience (in the previous response) publicly to discuss the impact of chronic pain?

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Do you give AARDA consent to use your first name and last initial in public communications?

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Would you like to be contacted by AARDA for future opportunities to share your story?

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