Our New Era!

Down Syndrome NSW recently launched its Strategic Plan 2021-2023 which can be found here: Strategic Plan.

In this we have identified six key strategic pillars to focus on with the aim of better meeting the needs of our members.

This is the start of our journey.

We need your input! We are seeking your honest views on our organisation so that we can move forward with confidence. We are willing to make the changes needed, as well as amplify the things that you think are great about our organisation.

There are no right or wrong answers - we are here to listen.

Please fill in this survey to help shape our strategic direction.

If you know any other family members or friends who would like to share their views, we warmly welcome you to send this survey far and wide!

This survey is due before Friday 4 June 2021.

Your privacy is important to us and will be protected.

We will produce a report to members on high level survey findings.

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* 1. I am

A person with Down syndrome

A parent / carer of a person with Down syndrome

A sibling of a person with Down syndrome

A grandparent of a person with Down syndrome

Other (please specify)

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* 2. Age of person with Down syndrome

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* 3. I live in the following NSW region

Sydney

Greater Western Sydney

Central Coast

Hunter New England

Illawarra Shoalhaven

Nepean Blue Mountains

Northern NSW

Southern NSW

Western NSW

Southern Highlands

Mid North Coast

Northern Sydney

South East Sydney

South West Sydney

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* 4. How old are you?

18-30 years

31-45 years

46 years and over

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* 5. Are you

Female

Male

Prefer not to say

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* 6. Are you a member of Down Syndrome NSW?

Yes

Not sure

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* 7. How long have you been a member of Down Syndrome NSW?

0-1 year

1-5 years

6-10 years

10+ years

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* 8. What kind of things does Down Syndrome NSW help you with (tick all that apply)?

UP!Club and other social connections

Up Up & Away

Advocacy

Employment assistance

Independent living

Attending workshops and information events

Peer support groups

Communications (eg social media, website, emails)

Behaviour support

Health issues (including ageing)

Housing

Prenatal information and support

Information and support for a new baby

Early intervention

NDIS support planning and plan reviews

Community and fundraising events (eg Step UP!, Scrapheap)

Website - information

Website - event registration

Website - donations

Website - enquiries

Library

Information

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* 9. Referring to services above, describe your experience with Down Syndrome NSW.

Extremely useful

Very useful

Somewhat useful

Not so useful

Not at all useful

Down Syndrome NSW has six strategic pillars which are:

DS NSW is proactive, contemporary, representative and engaged, with its members firmly at the centre
DS NSW promotes systemic, individual and self advocacy
DS NSW is a leader in DS information, research and best practice expertise
DS NSW is an employer of choice
DS NSW is known and connected, leveraging partnerships to further our mission
DS NSW is financially viable, sustainable and growing

Referring to these six strategic pillars please answer the following questions.

Strategic Pillar 1
DS NSW is proactive, contemporary, representative and engaged, with its members firmly at the centre

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* 10. What have we done well?

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* 11. What could we do better?

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* 12. What would you like us to do?

Strategic Pillar 2
DS NSW promotes systemic, individual and self advocacy

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* 13. What have we done well?

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* 14. What could we do better?

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* 15. What would you like us to do?

Strategic Pillar 3
DS NSW is a leader in DS information, research and best practice expertise

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* 16. What have we done well?

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* 17. What could we do better?

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* 18. What would you like us to do?

Strategic Pillar 4
DS NSW is an employer of choice

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* 19. What have we done well?

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* 20. What could we do better?

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* 21. What would you like us to do?

Strategic Pillar 5
DS NSW is known and connected, leveraging partnerships to further our mission

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* 22. What have we done well?

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* 23. What could we do better?

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* 24. What would you like us to do?

Strategic Pillar 6
DS NSW is financially viable, sustainable and growing

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* 25. What have we done well?

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* 26. What could we do better?

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* 27. What would you like us to do?

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* 28. Are you aware that Down Syndrome NSW works as part of the Federation of Down Syndrome Associations that includes the national body Down Syndrome Australia over the past 10 years?

Yes

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* 29. How has this benefited you and your family?

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* 30. What are the challenges for this national approach for you and your family?

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* 31. To be most effective would you prefer Down Syndrome NSW to focus on:

Building stronger ties with Down Syndrome Australia

Focus more on being state-focused within New South Wales and representing ourselves to the Federal Government on key issues separately to Down Syndrome Australia

Comment

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* 32. How do you like to receive information on us, events, information?

Direct email

Post mail

Website

Other blog / website / list

Facebook

Instagram

Newsletter

Other / comments (please specify):

Comments:

Our New Era!

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* 1. I am

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* 2. Age of person with Down syndrome

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* 3. I live in the following NSW region

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* 4. How old are you?

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* 5. Are you

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* 6. Are you a member of Down Syndrome NSW?

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* 7. How long have you been a member of Down Syndrome NSW?

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* 8. What kind of things does Down Syndrome NSW help you with (tick all that apply)?

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* 9. Referring to services above, describe your experience with Down Syndrome NSW.

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* 10. What have we done well?

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* 11. What could we do better?

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* 12. What would you like us to do?

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* 13. What have we done well?

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* 14. What could we do better?

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* 15. What would you like us to do?

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* 16. What have we done well?

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* 17. What could we do better?

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* 18. What would you like us to do?

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* 19. What have we done well?

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* 20. What could we do better?

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* 21. What would you like us to do?

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* 22. What have we done well?

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* 23. What could we do better?

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* 24. What would you like us to do?

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* 25. What have we done well?

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* 26. What could we do better?

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* 27. What would you like us to do?

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* 28. Are you aware that Down Syndrome NSW works as part of the Federation of Down Syndrome Associations that includes the national body Down Syndrome Australia over the past 10 years?

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* 29. How has this benefited you and your family?

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* 30. What are the challenges for this national approach for you and your family?

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* 31. To be most effective would you prefer Down Syndrome NSW to focus on:

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* 32. How do you like to receive information on us, events, information?

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* 33. If you had a magic wand what type of activities would you like DS NSW to provide? Think BIG!