A Survey from VHL Alliance (vhl.org)

Assessing VHL Tissue Banking Needs

As a means of advancing VHL research, the VHL Alliance would like to better understand your needs for tissue samples. We would greatly appreciate it if you could take a few minutes of your time to respond to the short survey below.

Thank you for your help!

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* 1. What is your full name?

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* 2. What is your contact information?

Email:

Telephone Number:

Institution:

Address:

City, State, Zip Code:

Country:

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* 3. In what type of tissue are you interested?

Kidney Tumor

Kidney Tissue

Brain Hemangioblastoma

Brain Tissue

Brainstem Hemangioblastoma

Spinal Hemangioblastoma

Spinal Tissue

Adrenal Tumor

Adrenal Tissue

Pancreatic Tumor

Pancreatic Tissue

Pheochromocytoma

Liver Tumor

Liver Tissue

Lung Tumor

Lung Tissue

What other tissues would be of interest?

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* 4. Are you interested in utilizing a VHL tissue bank

Yes

Undecided

I utilize tissue from my own or my institution's tissue bank

Comments:

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* 5. By which method would you want the tissues to be preserved?

Fresh: Tissues are placed immediately in media (typically DMEM or RPMI) in a clean container. If desired, antibiotics maybe added to inhibit bacterial growth. The sealed container is stored at 4C and shipped on ice, unless otherwise specified by the researcher.

Frozen: Tissues are placed in a clean container and stored at -70C. Tissues are shipped on dry ice.

Snap Frozen: Tissues are placed in a clean container and immediately snap frozen either in liquid nitrogen or in a dry ice/ethanol bath. Tissues are stored at -70C and shipped on dry ice. (Surcharge will be added.)

OCT: Small tissue samples are placed in a specialized cassette, covered with freezing medium and snap frozen as above.

Fixed: Tissues are submerged in 10% buffered formalin and maintained at room temperature for storage and shipping.

Paraffin Embedded: Tissues are fixed in 10% buffered formalin and sent to a specialized processing facility in a paraffin block. (Surcharge will be added.)

Other (please specify)

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* 6. What basic supplemental data about the patient would be of interest?

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* 7. How many individual patients do you expect to need?

1-5

6-20

21-50

Other (please specify)

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* 8. Are you interest in tissue from living patients and/or postmortem?

Living patients

Postmortem

Both living patients and postmortem

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* 9. In what time frame do you expect to need tissue?

Immediately

1-3 years

3-5 years

Other (please specify)

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* 1. What is your full name?

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* 2. What is your contact information?

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* 3. In what type of tissue are you interested?

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* 4. Are you interested in utilizing a VHL tissue bank

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* 5. By which method would you want the tissues to be preserved?

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* 6. What basic supplemental data about the patient would be of interest?

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* 7. How many individual patients do you expect to need?

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* 8. Are you interest in tissue from living patients and/or postmortem?

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* 9. In what time frame do you expect to need tissue?

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* 10. Other comments