Last year, the UK government proposed changes to the disability benefit Personal Independence Payment (PIP) which would make it harder to qualify. With the help of people like you in the CF community, we pushed back and the Government was forced to back down and hold a review of PIP instead – the first one in 10 years.

By filling out our anonymous survey you are helping us make the strongest possible case on behalf of the CF community to improve PIP. We intend to publish the collated survey’s results and use them to lobby politicians and get press coverage.

Most of the questions in this survey can be skipped. Those which cannot be skipped are essential to tailor the questions to you and your experience.

This survey is anonymous. If you are a person with CF who has been let down by the PIP system and would like to share your PIP story publicly, so it can be shared with MPs or used in the media, please email us at stories@cysticfibrosis.org.uk

If you need benefits advice or are struggling with your finances please speak to your CF specialist social worker or contact our Helpline.

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