Scottish Huntington's Association - 2026

We need your help!


In today's challenging funding climate, it matters more than ever to show the difference Scottish Huntington’s Association makes to the lives of individuals and families across Scotland impacted by Huntington’s disease. Knowing more about your experience will help us to report accurately to current funders while also building the case for increased funding to safeguard and expand the support that so many people rely upon.

Scottish Huntington's Association is running this survey with Insley Consulting, a trusted partner that will collect, analyse and independently verify the results. Your answers are kept secure and used only for this purpose, in line with UK General Data Protection Regulation (GDPR). You can ask to see, change or delete your information at any time by emailing sha-admin@hdscotland.org — full details are in our privacy policy.

The survey has around 30 questions depending on your answers, and includes space to add additional comments should you wish. Please take as long as you need to complete the questions and should you need any further information, please contact us at sha-admin@hdscotland.org

Thank you for your help.

Because some of these questions relate to your connection with Huntington's disease, we need your consent before we start.