Dear Colleague,

Thank you for taking the time to participate in this survey. Your expertise is essential to better understand current oral care practices across hematopoietic cell transplantation (HCT) and cellular therapy (CT) centers.

This study aims to assess the adoption and routine use in clinical practice of international oral care guidelines, and to identify factors that facilitate or hinder their implementation. Your participation will contribute to generating an overview of current practices of EBMT centers and support future improvements in patient care.

Scope of the Survey

This survey focuses specifically on oral care during the transplant and cellular therapy process, including the conditioning phase and the period of aplasia/neutropenia in both adult and pediatric settings. It does not address general oncology care outside the transplant context.

Guideline Basis

The questionnaire is based on the MASCC/ISOO Clinical Practice Guidelines for the Management of Mucositis and the MASCC–EBMT recommendations for basic oral care. These provide evidence-based guidance on oral assessment, hygiene measures, and preventive interventions such as cryotherapy and photobiomodulation.

Instructions

• Please complete one questionnaire per program (adult or pediatric)
• If needed, you may consult colleagues or forward the survey to the person most knowledgeable about oral care practices in your center

Your Contribution Matters

Even if not all guideline components may not be implemented in your center, your response is highly valuable. Understanding variation across centers is essential to improve implementation strategies and patient outcomes.

Thank you very much for your contribution.

Best regards,

Carlotta Cadsky – Principal Investigator
Lynn Leppla – Chair Nurses Group Research Committee
Annika Kisch – Nurses Group Research Committee Representative
Hilda Mekelenkamp – President Nurses Group
Jarl Mooyaart – Statistician
Brian Piepenbroek – Study Coordinator


The personal data provided will be processed solely to gather information for this study and according to the General Data Protection Regulation (GDPR 2016/679). The personal data will be incorporated to a database property of EBMT. Data Subjects have the right of access, rectification, erasure, restriction, data portability and objection to the processing of his or her personal. For further information please see the EBMT Privacy Policy.

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