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Spot The Early Signs of Long-chain fatty acid oxidation disorders
1.
Your details:
First Name
Last Name
Country
Email address
Specialty
Years of Experience
Type of Health Setting
2.
When was the last time you received training on Long-chain fatty acid oxidation disorders?
Never
Undergraduate studies
During specialty/residency
CME course in the last 10 years
CME course in the last 5 years
Other (please specify)
3.
How confident do you feel that you will recognise the symptoms of Long-chain fatty acid oxidation disorders?
Very confident.
Slightly confident.
Not confident at present
4.
Is Long-chain fatty acid oxidation disorder one of the conditions you suspect as a possible diagnosis when addressing a patient in your everyday practice?
Very likely
Likely
Neither likely nor unlikely
Unlikely
Very unlikely
5.
How often do you ask for a complete family health background when addressing a new patient in your practice?
Always
Never
Sometimes
6.
Are you aware of available treatments for patients with Long-chain fatty acid oxidation disorders? Which of the following statement do you agree with the most?
I know there is treatment, but I don't know much about how it works or the impact on the patient's health.
I know very well the available treatments.
I don't know whether a treatment exists or not.
7.
Do you think that early diagnosis and reference of a patient with a rare disease will make a difference? Which of the following statement do you agree with the most?
It won't make much difference. Rare diseases are severe untreatable conditions.
It will make a difference only if a treatment exists.
It will make a difference if treatment is started early enough.
8.
Have you or a colleague working closely with you, ever encountered a patient who proved to suffer from a Long-chain fatty acid oxidation disorder?
Once
Twice
More
Never
9.
If you had a patient with suspected Long-chain fatty acid oxidation disorder, to which specialty, department or service would you refer him?
Current Progress,
0 of 9 answered
