Skip to content
Spot The Early Signs of Batten Disease
1.
Your details:
First Name
Last Name
Country
Email address
Specialty
Years of Experience
Type of Health Setting
2.
When was the last time you received training on Batten Disease?
Never
Undergraduate studies
During specialty/residency
CME course in the last 10 years
CME course in the last 5 years
Other (please specify)
3.
How confident do you feel that you will recognise the symptoms of Batten Disease?
Very confident.
Slightly confident.
Not confident at present
4.
Is Batten Disease one of the conditions you suspect as a possible diagnosis when addressing a patient in your everyday practice?
Very likely
Likely
Neither likely nor unlikely
Unlikely
Very unlikely
5.
How often do you ask for a complete family health background when addressing a new patient in your practice?
Always
Never
Sometimes
6.
Are you aware of available treatments for patients with Batten Disease? Which of the following statement do you agree with the most?
I know there is treatment, but I don't know much about how it works or the impact on the patient's health.
I know very well the available treatments.
I don't know whether a treatment exists or not.
7.
Do you think that early diagnosis and reference of a patient with a rare disease will make a difference? Which of the following statement do you agree with the most?
It won't make much difference. Rare diseases are severe untreatable conditions.
It will make a difference only if a treatment exists.
It will make a difference if treatment is started early enough.
8.
Have you or a colleague working closely with you, ever encountered a patient who proved to suffer from Batten Disease?
Once
Twice
More
Never
9.
If you had a patient with suspected Batten Disease, to which specialty, department or service would you refer him?
Current Progress,
0 of 9 answered
