Do you have a child with SEND 14-25 years?


A key role of Brent Parent Carer Forum CIC (BPCF) is to work inpartnership with commissioners and service providers across health ,education and social care to represent the views of parents carers in order to influence services and get the best provision for a young people aged 14-25 with SEND in Brent.

Your feedback is so important in ensuring services are meeting the needs of your child.
We want to know about your 'lived experiences' of accessing and using SEND services.
Your responses will be fed back to the Local Authority and North West London Integrated Care Board NHS to enable them to make informed decisions that will make improvements and deliver more efficient and effective services to you as a parent carer or family member looking after a child or young person with SEND 0-25.
We really want to know more about your experiences to ensure together we are making a difference.
What has improved or where are there still gaps?

If you would like help completing this survey please email admin@brentpcf.org or call Carol Foyle 07852101492 We plan to host sessions to support parents to complete the survey if needed.
The closing date for this survey is Saturday 31st January 2026 - All completed surveys will be entered in to a prize draw for 2 £40 gift vouchers,which will be drawn at our forum meeting in March 26
We will produce a report to feedback on the findings of this survey.

Thank you for your help.

Question Title

1. Do you consider your young person to have special educational needs and disabilities that require support for them to achieve their goals in life? (Required.)

Question Title

2. If yes, please describe your child's disability (please tick all that apply)

Question Title

3. please tell us the age of your son/daughter?

Question Title

4. Please tell us what you like about living in Brent

Question Title

5. Please tell us about barriers you face living in Brent

Question Title

6. Who were your child's needs first identified by? (Required.)

Question Title

7. If you made a request for an assessment to Occupational therapy, Audiology ADHD,ASD, dietician, EP, CAMHS or any other services between January 2024 to now.
Please tell us in the box below which service your son/daughter was referred to and how long you waited or are waiting ?

Question Title

8. While waiting for your child's diagnosis or assessment,did you receive any support from any one or service?

Question Title

9.
How satisfied were you with the identification of your child's needs?

Question Title

10. After receiving your child's diagnosis please tell use about the support you received and what services you was signposted too ?

Question Title

11. Please tell us post diagnosis. Is there any information or support that would helped you more  at home or at school?

Question Title

12. If your young person has complex needs from birth, how well are you supported ?

Question Title

13. Were there any barriers that made it harder for you to access services ?

Question Title

14. If you were informed that your young person did not or no longer meets the criteria for a service, ie children to adults services. How satisfied were you with the advice given or information of alternative support or services that may be available to your child?

Question Title

15. Does your young person attending any services or actitives in Brent

Question Title

16. How safe and accessible do you feel your young perosn is in Brent ?

Question Title

17. What school or college does your young person attend?

Question Title

18. If your child is being support by SEND support (the graduated approach) did you understand the process and felt included?

Question Title

19. Does your son/daughter have a Education, Health and Care Plan EHCP? (Required.)

Question Title

20. Were you satisfied with the EHCP assessment process ?

Question Title

21. Please tell us about the support you and your childs receives at school or college

  Very satisfied Satisfied Dissatisfied Very dissatisfied neither satified or dissatified 
The level of support your child receives at school.
The information provided and settling process
The communication that you receive about your child's progress.
That you are listened to and your views are considered
That the support your child receives is making a positive difference
The staff in the setting are trained?

Question Title

22.
Please tell us how satisfied you are or were with the service(s) you currently or have previously used.

  Very satisfied Satisfied Dissatisfied Very dissatisfied never used 
College
Shaw trust
Thw 0-25 SEND service (Educational Needs Assessment Service)
Community children’s nursing team
Portage team (Home visiting service for pre- school children with special needs)
Early Years Inclusion Team
BOAT (Brent Outreach and Autism Team)
SENDIASS (Special Educational Needs and Disabilities, Information and Support Service)
Early Intervention Services (eg key working, early help assessment)
Educational Psychology service
Children with Disabilities Social Care team
The Family Front door (Early Help)
Speech and Language Therapy
Occupational Therapy
Physiotherapy team
Community Paediatric service
Wheelchair service
Brent Deaf and Hearing Impaired Service (BDHIS)
Brent Vision Impairment Service (BVIS)
Children and Adolescent Mental Health Service (CAMHS)
Community Mental Health Team
Family Information Service
 Parent Carer support  groups 
Parent Carer services - Brent Carers service 
Brent Carers Service
Wellbeing and Emotional Support Team (WEST)
Supporting the Assessment for Autism Route (STAAR)
Art/Music therapy sessions
Brent Parent Carer Forum (BPCF)
Family Wellbeing Centres
Family Solutions Team
Parenting support training/programmes 
Short Breaks 
The Front Door (MASH) Early Help 
Brent Hubs  Information and advice 
School Transport 
Local Library
Attending a breakfast or after school session
attending a play/youth scheme

Question Title

23. Please tell us about how easy has it been to find and/or access services for young people

Question Title

24. Please tell us about the support /information about what is available after school ie university /college

Question Title

25. Please tell us about yours and your young person's experience of preparing for Adulthood

Question Title

26. Please tell us abouit the support your young person received about careers and preparing for work ?

Question Title

27. Please tell us about the support your young person received about Internship and or finding a job ?

Question Title

28. These statements relate to the services you currently or previously used Please tell us to what extent you agree or disagree (Required.)

  Strongly agree Agree Disagree Strongly disagree
You and your young persons views and needs are listened to and points raised are taken into account
You are involved in planning your young persons support
Information provided is adequate enough for you to make informed decisions about the support your young persons needs
You are actively involved in your young persons support and learning
Your young persons needs are being met
You have a positive relationship with the people involved in supporting and planning support for your young person?
Your young person,s needs are reviewed regularly and you are actively involved
You feel you can talk to your young person,s school/ colllefe /setting about anything

Question Title

29. These statements relate to the impact on the support you received and/or services made on yours and your child's life. (Required.)

  Strongly agree Agree Disagree Strongly disagree
The support my child receives has made a positive difference to my child's life
The support my child receives has improved my child's relationship with their family
The support my child receives has improved my child's relationships with other children
The support my child receives has led to my child being more successful at school
The support my child receives has improved my relationship with my child
The support my child receives has improved my child's life chances and outcomes for the future 
The suport I recieved as a parent has equipped me to feel better informed and equipped to understand and support my child's needs
My child and I received postive support transiitioning to starting schools
Good support choosing schools
Finding the information and support you needed in the local offer

Question Title

30. As Brent's official parent-led independent group/forum for families and young people with SEND 0-25, do you have any suggestions how we could improve the way we provide support to you as parents? (Required.)

Question Title

31. A key role of BPCF is to enable parent carers are better informed, sign posted to and involved in services review and or developments.
We use a number of different ways to ensure we reach as many parents as possible - please tick all the ways that would be of a benefit to you .
(Required.)

Question Title

32. How do you currently access information about SEND services in Brent (tick all that apply) (Required.)

Question Title

33. The Council's Local Offer
The Children and Families Act changed the way in which children and young people with Special Educational Needs and Disabilities (SEND) are supported at school and in the community. The Act was implemented in September 2014. From September 2014 every local authority was required to have a “local offer” which informs parent/carers and young people with SEND what is provided in their local area, including what to expect from local early years providers, schools, colleges, health and social care. In addition, it includes information on how decisions are made about how services are allocated, how to request a personal budget, how to access more specialist support and how to complain or appeal. For more detailed information, please click on this weblink or https://www.brent.gov.uk/localoffer
(Required.)

  Yes No
Are you aware of the Council's Local Offer website?
Have you read the Council's Local Offer?
Have you used the Local Offer website?
Was it easy to use the website?
Did you find the information you were looking for?
 Were you aware of  the new  Preparing for Adulthood - PFA (brentyouthzone.org.uk)

Question Title

34. Do you have any suggestions for how we could improve the Local Offer website?

Question Title

35. Do you have any suggestions on how we can improve services for children and young people with special educational needs and disabilities?

Question Title

36. Thank you for taking the time to complete this survey it is much appreciated. Would you be interested in being involved to improve services in the future? This could be in a number of ways for example, taking part in focus groups,  joining the Brent Parent Carer Forum,  or training to become SEND parent Champion. If you would like to hear more about these and other opportunities then please complete contact details below (please be assured that your personal data will be held in the strictest confidence and in compliance with GDPR and our  Data Protection Policy):

Question Title

37. if you want to be entered into the prize drawer please let us have your name and mobile number 

0 of 37 answered
 

T