Patient survey on Libtayo/Cemiplimab therapy for adult
cutaneous squamous cell carcinoma (SCC) in the metastatic setting.

This survey is intended to gather patient perspective to inform the Save Your Skin Foundation treatment recommendations to the CADTH Common Drug Review (CDR) and to pan-Canadian Oncology Drug Review (pCODR).  We invite all cutaneous squamous cell carcinoma patients who received Libtayo/Cemiplimab to complete this survey.

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* 1. Are you male or female?

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* 2. What is your age?

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* 3. Which of the following best describes your employment status?

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* 4. If you live in Canada, in what province/territory do you reside?

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* 5. If you do not live in Canada, in what country do you reside?

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* 6. In what year were you first diagnosed with squamous cell carcinoma, whether primary or metastatic?

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* 7. In what year were you diagnosed with metastatic squamous cell carcinoma?

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* 8. What has been your experience with this type of cancer?

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* 9. What are your ongoing symptoms with this type of cancer?

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* 10. What is your experience with current therapies for SCC?

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* 11. When you received Libtayo/Cemiplimab, how did you obtain this treatment?

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* 12. Did you complete the full course of treatment? If not, please explain why.

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* 13. What (if any) side effects did you experience from this treatment? (select all that apply)

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* 14. Were the side effects manageable?

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* 15. If you experienced side effects from this drug therapy, did the benefits of the treatment outweigh the experience of the side effects?

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* 16. Did you experience any hardships that barred you from accessing this drug therapy? Was the treatment readily available to you? Hardships could mean having to travel long distances; not having quick access to treatment or having to personally pay the cost of therapy, for example. Please explain.

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* 17. How important is/was it to you and your family members or caregivers that you received this treatment?  If you could describe what you as a patient are looking for in new treatments coming to market, what would you say?

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* 18. If you were to be offered a drug therapy on a clinical trial, would you consider taking it?

Thank you for your time!  To learn more about the results of this survey and subsequent pCODR submission, watch for news on our website at www.saveyourskin.ca or email kathy@saveyourskin.ca

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