Diagnosis Stories: Alport syndrome (18+, Self-Reporting)

The following survey, open to the global Alport patient community, is designed to build clearer understanding of patterns and tipping points that lead to an accurate Alport syndrome diagnosis. Obtaining this information has been identified as important by medical professionals and Alport researchers. This survey is anonymous, or you may choose to provide an email address so that ASF Staff can contact you if clarification is needed. Personally identifiable information will not be viewed or shared outside Alport Syndrome Foundation (ASF). This is an ongoing survey project and updated, collective results will be released to the patient and medical community in April 2022.