Barriers to getting medical and dental care for people with complex needs Survey

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* 1. In the last 5 years, have you or the person you support avoided medical or dental care.

Yes

No (Go to Question 5)

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* 2. If "Yes" what were the reasons you did not go to a medical or dental professional/s ?

You had a bad experience in the past

You see the person's behaviour as a barrier to getting help

Other (please explain)

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* 3. What did you do instead of asking for medical or dental care?

I asked a friend or family member

I asked the chemist/pharmacist

I looked on the internet

I called Health Direct

I tried to deal with it myself

I wasn't able to do anything

Other (please explain)

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* 4. What was the outcome?

I was able to deal with the problem

I was not able to deal with the problem but it went away by itself

I was not able to deal with the problem and I still have it

The problem got worse and I did go to a medical or dental professional

If you feel comfortable please tell us what the problem was and what you have done

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* 5. If you have looked for medical or dental care in the past 5 years, what was the purpose?

General health discussion at GP

Medical investigation at a medical clinic

Medical investigation at a hospital

Medical procedure requiring day surgery

Medical procedure requiring overnight hospital stay

Dental assessment/and or procedure

Blood taken or immunisation

Emergency attendance

Other (please explain)

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* 6. What led you to seek support in these situations?

General check up

General signs of being unwell

Indicators of pain

Planned process as part of an ongoing medical plan

Change in behaviour

Emergency injury

Reminder in the post/email

Decline in health

Other (please explain)

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* 7. At the times you sought medical or dental care, were your experiences positive?

Always

Mostly

Sometimes

Occasionally

Seldom

Never

Other (please explain)

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* 8. When the experience has been positive, what worked well?

The waiting time was managed

Quality of interaction with you or the person you support

Extra time was allowed as needed

We were listened to

Respectful ways were found to negotiate challenging behaviours

Problem solving by the professionals in partnership with the person/their family

We got the medical or dental care we needed

Other (please explain)

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* 9. When your experience has been negative, what were some of the factors?

Waiting period too long

Refusal of service

Lack of time in the appointment

The behaviour of the person with disability

Quality of interaction with the professional

Dismissal of our concerns, eg belief that disability, not illness, was the cause of the symptoms

Not being listened to

Knowledge of the person’s disability/particular needs

Lack of physical access (eg hoist, accessible x-ray facility etc)

Medical facility rules, policies and practices

Other (please explain)

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* 10. What issues did you or the person you support have that were barriers to getting health care?

Inability to remain still

Difficulty waiting

Screaming, yelling

Sensory processing

Verbal negativity e.g. swearing at others

Refusal to allow people to touch them

Resistance to procedures such as blood pressure, needles, taking temperature etc

Other (please explain)

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* 11. How did the health professionals respond to these issues?

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* 12. Have there been times when you felt that challenging behaviour was caused by a medical problem, for example toothache or undiagnosed pain, urinary tract infection or other illness? Please describe:

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* 13. We are interested in any strategies you have found to overcome barriers to getting medical or dental care to help other people and families
- please share them with us here:

Xray / Cat scan

Stiches - treatment and removal

Dental

Blood test

Vaccinations / needles

Anaesthetic

Removing bandages/canulas

EEG

Sleep study

MRI

Giving medication

Casting (broken bones)

Waiting period

Mammography

Pap Smear

Mole Scanning

Sight Test

Hearing Test

Other - (please explain)

If you are having difficulty getting the medical or dental care you need you can contact advocates at the
Health Consumers’ Council on 9221 3422

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* 14. Please provide contact details if you would like to be in the draw for the $50 Coles/Myer Gift Card

Name

Post Code

Email Address

Phone Number

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* 1. In the last 5 years, have you or the person you support avoided medical or dental care.

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* 2. If "Yes" what were the reasons you did not go to a medical or dental professional/s ?

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* 3. What did you do instead of asking for medical or dental care?

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* 4. What was the outcome?

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* 5. If you have looked for medical or dental care in the past 5 years, what was the purpose?

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* 6. What led you to seek support in these situations?

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* 7. At the times you sought medical or dental care, were your experiences positive?

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* 8. When the experience has been positive, what worked well?

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* 9. When your experience has been negative, what were some of the factors?

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* 10. What issues did you or the person you support have that were barriers to getting health care?

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* 11. How did the health professionals respond to these issues?

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* 12. Have there been times when you felt that challenging behaviour was caused by a medical problem, for example toothache or undiagnosed pain, urinary tract infection or other illness? Please describe:

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* 13. We are interested in any strategies you have found to overcome barriers to getting medical or dental care to help other people and families- please share them with us here:

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* 14. Please provide contact details if you would like to be in the draw for the $50 Coles/Myer Gift Card

* 13. We are interested in any strategies you have found to overcome barriers to getting medical or dental care to help other people and families
- please share them with us here: