Overview and Demographics




We need your help. Stone Soup Group is developing a Rare Care Informed training curriculum for our staff. We’re asking you to complete this survey to help us develop an appropriate and Alaska specific training curriculum to better serve individuals and families who live with rare diseases in Alaska. 

Who should fill this out:  
  • Alaskans who live with a rare disease, or a caregiver to a child or adult with a rare disease. 
  • Alaskans who are undiagnosed, but suspected of having a rare disease.  
Note:
If you are a caregiver of more than one child or adult with a rare disease, please complete a survey for each child/adult.   

If you live with a rare disease, and have a child with a rare disease, please fill out one for yourself, and one for your child.  
 
This survey should take 11 minutes or less to complete. Thank you for your help.

Question Title

* 1. Do you currently live in Alaska?

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