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Rethinking Schizophrenia

Rethinking Schizophrenia Survey

The second phase of the Rethinking Schizophrenia project, co-created by the European Brain Council (EBC) and the European Psychiatric Association (EPA), aims to describe the care pathway of people from the first episode of psychosis and schizophrenia to long-term care throughout the mental health system in different European countries with a focus on youth and young adults. We invite all healthcare providers (psychiatrists, psychologists, nurses, social workers, general practitioners, etc.), particularly from the selected countries (Belgium, Denmark, France, Germany, Hungary, Italy, Poland, Spain and UK), to share their insights on this topic.

It takes approximately 10 minutes to fill in the form.
The responses are anonymous and should primarily reflect the situation in your country, your personal experience and opinion.
Runtime of survey: 13th May – 31st August 2024
Thank you!
1.What is your country of work? Select one answer
2.What is your age? Select one answer
3.What is your gender? Select one answer
4.What is your profession? Select one answer
5.How long is your professional experience (years)? Select one answer
6.How many patients with schizophrenia is in your care (please enter number)
7.Do you consider the system of care for people with schizophrenia in your country optimal? Select one answer
8.In your opinion, what are the major problems and deficiencies of the care pathway? Please describe
9.In your opinion, how strongly is schizophrenia in your country associated with stigma among general public ? Please indicate the scale from 0 (none) to 10 (most severe)
0 (none)
10 (most severe)
10.Have there been any recent (in the past 5 years) anti-stigma program or campaign? Select one answer
11.In your opinion, how well are other health care professionals (physicians, GPs, nurses) educated about schizophrenia? Please indicate the scale from 0 (not at all) to 10 (best)
0
10
12.Which population / professionals should be primary target of education on mental health and anti-stigma programs? Please describe
13.In your opinion, what is the level of discrimination people with schizophrenia face (at school, work, social life, etc)? Please indicate the scale from 0 (none) to 10 (most severe)
0
10
14.Are there early detection services for at-risk states for psychosis available? Select one answer
15.In general, are there barriers in access to mental health services? Select one answer
16.If yes, what kind of barriers? Please describe
17.What is the status of the mental health care reform in your country? Please describe
18.What is the typical contact of a person with first-episode psychosis within your health system? Please describe
19.Are people with first-episode schizophrenia hospitalized? Select one answer
20.Is treatment initiation decision shared withthe patient and carers/relatives? Select one answer
21.Is family / primary caregiver involved in the treatment plan? Select one answer
22.Is a multidisciplinary care approach (involvement of a psychiatrist, psychologist, nurse, social worker) implemented from the beginning of treatment? Select one answer
23.What is the typical duration of hospital stay for first episode? Select one answer
24.What are the major challenges and obstacles during transition from inpatient to outpatient care? Please describe
25.What are the major barriers of full recovery and functioning? Select one or more answers
26.Upon discharge, does the patient have secured continuous treatment and follow-up care? Select one answer
27.Is the outpatient care provided by the same therapeutic team? Select one answer
28.Is thechoice of the type of outpatient care a decision shared with the patient, and/or their family? Select one answer
29.What is the role of GPs in the long-term outpatient care for people with schizophrenia? Select one answer
30.Arethe community mental health services widely available? Select one answer
31.Are day hospitals for mentally ill widely available? Select one answer
32.Are the social services for mentally ill (e.g. supervised housing, supported jobs) widely available? Select one answer
33.Are there any systems of relapse prevention available? Select one answer
34.Are there programs of cognitive remediation and/or cognitive behavioural therapy for psychosis available? Select one answer
35.Are there any self-help groups orpatient organizations available? Select one answer
36.Are there national guidelines for schizophrenia treatment? Select one answer
37.If yes, do the guidelines include recommendations on the management of negative and/or cognitive symptoms? Select one answer
38.Are all new antipsychotics (registered by EMA) available? Select one answer
39.If not, which which antipsychotics are not available? Please list
40.Is drug treatment for schizophrenia covered by insurance / reimbursed? Select one answer
41.Do people with schizophrenia have adequate access to medical care (for physical health)? Select one answer
42.If not, what are the major obstacles? Please describe
43.Are new technologies (VR, AI, telemedicine, wearables, mobile technology, etc.) used for treatment or recovery of people with schizophrenia? Select one answer
44.If yes, please describe how?
45.Do you have a positive story to share (personal experience, individudual, at country level, etc)? Please describe and share website link if possible