Evaluation Online Conference QUALITYOFLIFE4OI 2024 Survey

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* 2. What was your (primary) role during the Conference?

Audience (Professional)

Audience (OI Community)

Speaker

Moderator

Sponsor

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* 3. What was your overall impression of ...

	Excellent	Good	Fair good	Poor	Very poor
the Programme of the Conference?	the Programme of the Conference? Excellent	the Programme of the Conference? Good	the Programme of the Conference? Fair good	the Programme of the Conference? Poor	the Programme of the Conference? Very poor
the Organisation of the Conference?	the Organisation of the Conference? Excellent	the Organisation of the Conference? Good	the Organisation of the Conference? Fair good	the Organisation of the Conference? Poor	the Organisation of the Conference? Very poor

Please share anything that you liked a lot or anthing you particularly disliked.

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* 4. How useful did you find this event?

Extremely useful

Useful

Fairly useful

Not useful

If the event was not useful, please explain why

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* 5. Were the speakers knowledgeable?

Strongly agree

Agree

Neither agree nor disagree

Disagree

Strongly disagree

Please list some of your favorite speakers:

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* 6. Relevance of the Conference QUALITYOFLIFE4OI 2022

	Very much	Mostly	Somewhat	Not much	Not at all	Undecided
How relevant was the Conference for you?	How relevant was the Conference for you? Very much	How relevant was the Conference for you? Mostly	How relevant was the Conference for you? Somewhat	How relevant was the Conference for you? Not much	How relevant was the Conference for you? Not at all	How relevant was the Conference for you? Undecided
Did the Conference fulfill your educational goals and expected learning outcomes?	Did the Conference fulfill your educational goals and expected learning outcomes? Very much	Did the Conference fulfill your educational goals and expected learning outcomes? Mostly	Did the Conference fulfill your educational goals and expected learning outcomes? Somewhat	Did the Conference fulfill your educational goals and expected learning outcomes? Not much	Did the Conference fulfill your educational goals and expected learning outcomes? Not at all	Did the Conference fulfill your educational goals and expected learning outcomes? Undecided
Was the presented information well balanced and consistently supported by a valid scientific evidence base?	Was the presented information well balanced and consistently supported by a valid scientific evidence base? Very much	Was the presented information well balanced and consistently supported by a valid scientific evidence base? Mostly	Was the presented information well balanced and consistently supported by a valid scientific evidence base? Somewhat	Was the presented information well balanced and consistently supported by a valid scientific evidence base? Not much	Was the presented information well balanced and consistently supported by a valid scientific evidence base? Not at all	Was the presented information well balanced and consistently supported by a valid scientific evidence base? Undecided

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* 7. Were the formats used during the conference (eg Key Notes, thematic workshops, polls, videos, networking sessions, posters) suitable to achieve the objectives of the Conference?

yes, (almost) always

yes, sometimes

Only rarely

Never

Undecided

Please indicate any formats that were innovative from your experience.

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* 8. Question in relation to the professional accredication (i.e. for professionals mainly): Will the information you learnt be implemented in your practice?

yes, very useful for my practice

yes, mostly useful for my practice

yes, somewhat useful for my practice

no, not much useful for my practice

no, not at all useful for my practice

undecided

Can you provide an example how you will use it in your future practice?

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* 9. Did all speakers provide their potential conflict of interest declaration with any sponsor(s)?

Yes, all

Yes, for the majority

Yes, but only a small part

Undecided / don't know

Can you provide an example of a biased presentation in this event?

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* 10. Do you agree that the information was overall free of commercial and other bias?

Strongly agree

Rather agree

Rather disagree

Strongly disagree

Undecided / don't know

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* 11. Staying connected on CARE4BONES:
Are you potentially interested in continuing collaboration and knowledge exchange on the subjects presented in the Conference? This takes place on the CARE4BONES platform.

I am not interested in CARE4BONES at the moment

I would like to know how to join CARE4BONES as an individual

I would like to know how to join CARE4BONES with our team

Not applicable (I am already on CARE4BONES)

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* 12. Key4OI and Key4OI Registry
During the Conference we introduced the Key4OI Registry. It will formally be opened in Q1 2024 and is open to all hospitals that meet the requirements. Please let us know, if you would like to work with Key4OI (potentially). We will be happy to provide you with more information.

We are already working with Key4OI / not applicable.

I would like to know more about this. Please contact me with more information.

Not interested at the moment.

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* 13. Adult Health Care for OI
We are currently assembling Healthcare providers, researchers and people with OI who are keen to work together for a project the Health of Adults with OI. Please let us know, if you are interested to be a part of this initiative.

I am interested, please provide me with more information

I am not interested at this stage / not applicable

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* 14. Would you be interested in taking the lead on a network/project in relation to quality of life for people with OI? If so please describe in a few sentences (topic/target audience/ goal). We will get in touch with you in the coming weeks to explore this together.

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* 15. Would you be interested in presenting on a topic during a webinar or roundtable some time in 2023? If so please provide topic, potential co-presenters, target audience and proposed month/date.

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* 16. In case you would like us to follow up with you, please share your contact details.

Name

Email Address

Evaluation Online Conference QUALITYOFLIFE4OI 2024

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* 1. The objective of the conference was to support partnership across all players in the OI ecosystem (researchers, healthcareproviders, OI Community and industry), enable knowledge sharing and focus the minds on Quality of Life for peple with OI.
Did we achieve this objective?

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* 2. What was your (primary) role during the Conference?

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* 3. What was your overall impression of ...

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* 4. How useful did you find this event?

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* 5. Were the speakers knowledgeable?

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* 6. Relevance of the Conference QUALITYOFLIFE4OI 2022

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* 7. Were the formats used during the conference (eg Key Notes, thematic workshops, polls, videos, networking sessions, posters) suitable to achieve the objectives of the Conference?

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* 8. Question in relation to the professional accredication (i.e. for professionals mainly): Will the information you learnt be implemented in your practice?

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* 9. Did all speakers provide their potential conflict of interest declaration with any sponsor(s)?

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* 10. Do you agree that the information was overall free of commercial and other bias?

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* 11. Staying connected on CARE4BONES:
Are you potentially interested in continuing collaboration and knowledge exchange on the subjects presented in the Conference? This takes place on the CARE4BONES platform.

Question Title

Question Title

* 13. Adult Health Care for OI
We are currently assembling Healthcare providers, researchers and people with OI who are keen to work together for a project the Health of Adults with OI. Please let us know, if you are interested to be a part of this initiative.

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* 14. Would you be interested in taking the lead on a network/project in relation to quality of life for people with OI? If so please describe in a few sentences (topic/target audience/ goal). We will get in touch with you in the coming weeks to explore this together.

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* 15. Would you be interested in presenting on a topic during a webinar or roundtable some time in 2023? If so please provide topic, potential co-presenters, target audience and proposed month/date.

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* 16. In case you would like us to follow up with you, please share your contact details.

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* 17. Any other feedback?

Evaluation Online Conference QUALITYOFLIFE4OI 2024

Question Title

* 1. The objective of the conference was to support partnership across all players in the OI ecosystem (researchers, healthcareproviders, OI Community and industry), enable knowledge sharing and focus the minds on Quality of Life for peple with OI. Did we achieve this objective?

Question Title

* 2. What was your (primary) role during the Conference?

Question Title

* 3. What was your overall impression of ...

Question Title

* 4. How useful did you find this event?

Question Title

* 5. Were the speakers knowledgeable?

Question Title

* 6. Relevance of the Conference QUALITYOFLIFE4OI 2022

Question Title

* 7. Were the formats used during the conference (eg Key Notes, thematic workshops, polls, videos, networking sessions, posters) suitable to achieve the objectives of the Conference?

Question Title

* 8. Question in relation to the professional accredication (i.e. for professionals mainly): Will the information you learnt be implemented in your practice?

Question Title

* 9. Did all speakers provide their potential conflict of interest declaration with any sponsor(s)?

Question Title

* 10. Do you agree that the information was overall free of commercial and other bias?

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* 11. Staying connected on CARE4BONES: Are you potentially interested in continuing collaboration and knowledge exchange on the subjects presented in the Conference? This takes place on the CARE4BONES platform.

Question Title

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* 13. Adult Health Care for OIWe are currently assembling Healthcare providers, researchers and people with OI who are keen to work together for a project the Health of Adults with OI. Please let us know, if you are interested to be a part of this initiative.

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* 14. Would you be interested in taking the lead on a network/project in relation to quality of life for people with OI? If so please describe in a few sentences (topic/target audience/ goal). We will get in touch with you in the coming weeks to explore this together.

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* 15. Would you be interested in presenting on a topic during a webinar or roundtable some time in 2023? If so please provide topic, potential co-presenters, target audience and proposed month/date.

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* 16. In case you would like us to follow up with you, please share your contact details.

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* 17. Any other feedback?

* 1. The objective of the conference was to support partnership across all players in the OI ecosystem (researchers, healthcareproviders, OI Community and industry), enable knowledge sharing and focus the minds on Quality of Life for peple with OI.
Did we achieve this objective?

* 11. Staying connected on CARE4BONES:
Are you potentially interested in continuing collaboration and knowledge exchange on the subjects presented in the Conference? This takes place on the CARE4BONES platform.

* 13. Adult Health Care for OI
We are currently assembling Healthcare providers, researchers and people with OI who are keen to work together for a project the Health of Adults with OI. Please let us know, if you are interested to be a part of this initiative.