Introduction

Community Consulting Teams of Boston(CCT) is working with Neurofibromatosis Northeast (NFNE), a not for profit organization supporting Neurofibromatosis patients, families and research to help understand what they are doing well and how they could improve their support and services to patients and families.  CCT is a not for profit organization comprised of  business school graduates who are interviewing a broad array of NFNE’s stakeholders including patients, families, board, staff, neurofibromatosis(NF) clinicians and researchers.

We would appreciate 15 minutes of your time to understand your NF support needs.  All replies will be confidential.   The survey is open until April 30, 2017.  You may forward the survey link  to other NF patients, families or friends within the New England area. 

 
20% of survey complete.

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