Peer Support Survey

Thank you for completing the following survey to gather feedback for Pheo Para Alliance’s peer support program. If you have any questions you may contact info@pheopara.org.

Question Title

* 1. Which of the following topics would you be interested in discussing with pheo/para peers? Please select the top three that are most important to you.

Finding a knowledgeable doctor

Self-care and stress release

Employment accommodations for pheo/para patients

Social isolation due to pheo/para

Dealing with anxiety

Coping with changes due to pheo/para

Identifying clinical trial opportunities and research findings

Dealing with "scanxiety" with upcoming procedures

Handling family dynamics related to genetic status

Other (please specify)

Question Title

* 2. Would you prefer that an expert in some of these topics join our peer group for the discussion?

Yes

Not sure

No preference

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* 3. Would you like to connect specifically with pheo/para peers who are the following? Please check all that apply.

Have the same specific pheo/para diagnosis as you do

Live in the same geographic region as you do

Are newly diagnosed or not yet diagnosed

Have the same genetic mutation/deletion

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* 4. Would you like assistance in learning how to use Zoom or other social media to help connect with pheo/para patients or groups?

Yes

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* 5. What time do you prefer for peer group calls?

Morning

Noon

Afternoon

Evening

Weekdays

Weekends

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* 6. What is your time zone?

Eastern

Central

Mountain

Pacific

Alaska

Hawaii

Other (please specify)

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* 7. Have you attended any of the Pheo/Para Alliance peer support or caregiver support calls?

Yes

Peer Support Survey

Question Title

* 1. Which of the following topics would you be interested in discussing with pheo/para peers? Please select the top three that are most important to you.

Question Title

* 2. Would you prefer that an expert in some of these topics join our peer group for the discussion?

Question Title

* 3. Would you like to connect specifically with pheo/para peers who are the following? Please check all that apply.

Question Title

* 4. Would you like assistance in learning how to use Zoom or other social media to help connect with pheo/para patients or groups?

Question Title

* 5. What time do you prefer for peer group calls?

Question Title

* 6. What is your time zone?

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* 7. Have you attended any of the Pheo/Para Alliance peer support or caregiver support calls?

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* 8. What suggestions do you have for improving our peer group or caregiver discussions?

Question Title

* 9. Do you have other ideas for providing support to the Pheo/Para community?