Raynaud's Local Group Feedback Survey

The Raynaud's Association is considering expanding our organization to local groups serving people with Raynaud’s and would appreciate your input and feedback on the concept.

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* Do you or someone in your family suffer from Raynaud’s phenomenon – an exaggerated response to cold temperatures or stress?

Yes

Unsure

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* Does the idea of a local Raynaud’s group appeal to you?

Likely - Yes, I’d be interested in joining.

Maybe - Depends on what it offers, where it meets, and other factors.

Probably not - I’m not likely interested in meeting with other Raynaud’s sufferers.

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* If we did introduce a Raynaud’s group, what would be your primary reason for joining? (please select only one response)

Meet and speak with other Raynaud’s sufferers.

Become more knowledgeable about Raynaud’s, treatments, and warming ideas.

Both: Socially connect with others and become better educated about Raynaud’s.

Other, please share it with us:

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* If you joined such a group, how would you prefer to meet? (please select only one response)

In person

Remote via Zoom or other video platform

Some combination of the above

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* What type of activities would make you more likely to want to attend meetings of such a group? (please check all that apply)

General discussion and information exchange with other sufferers

Demo/show & tell with warming products (heated apparel, warming creams, etc.)

Speaker event with a medical professional

Educational webinar with the national organization

Discussion/demo of self-help techniques with local practitioners/therapists

Work on projects involving advocacy or building awareness for Raynaud’s

Other, please share your thoughts with us:

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* What do you like most about the concept of a local Raynaud’s group?

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* What do you like least about the idea of a local Raynaud’s group?

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* Anything else you’d like to share with us or ask us about the concept?

Just a few more questions to help us better understand the opportunity for the concept of local Raynaud’s groups.

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* Is your Raynaud’s the primary or secondary form?

Primary (no autoimmune ailment present)

Secondary (by-product of an autoimmune disease, work-related injury/trauma, excessive smoking, circulatory ailment, drug use or exposure to toxins)

Not sure

If secondary, please list primary ailment(s)

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* Where do you live? Please list City/State or Province/Country

Thanks so much for your input!

If you have experience in working with or managing local self-help groups and would be interested in helping us get new groups started, please share your contact information and previous experience - thank you!

Raynaud's Local Group Feedback Survey

Question Title

* Do you or someone in your family suffer from Raynaud’s phenomenon – an exaggerated response to cold temperatures or stress?

Question Title

* Does the idea of a local Raynaud’s group appeal to you?

Question Title

* If we did introduce a Raynaud’s group, what would be your primary reason for joining? (please select only one response)

Question Title

* If you joined such a group, how would you prefer to meet? (please select only one response)

Question Title

* What type of activities would make you more likely to want to attend meetings of such a group? (please check all that apply)

Question Title

* What do you like most about the concept of a local Raynaud’s group?

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* What do you like least about the idea of a local Raynaud’s group?

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* Anything else you’d like to share with us or ask us about the concept?

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* Is your Raynaud’s the primary or secondary form?

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* Where do you live? Please list City/State or Province/Country

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* Name

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* Email

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* Where do you live?

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* Previous Experience: