Raynaud's Local Group Feedback Survey

The Raynaud's Association is considering expanding our organization to local groups serving people with Raynaud’s and would appreciate your input and feedback on the concept.

Question Title

Do you or someone in your family suffer from Raynaud’s phenomenon – an exaggerated response to cold temperatures or stress? (Required.)

Yes

Unsure

Question Title

Does the idea of a local Raynaud’s group appeal to you?

Likely - Yes, I’d be interested in joining.

Maybe - Depends on what it offers, where it meets, and other factors.

Probably not - I’m not likely interested in meeting with other Raynaud’s sufferers.

Question Title

If we did introduce a Raynaud’s group, what would be your primary reason for joining? (please select only one response)

Meet and speak with other Raynaud’s sufferers.

Become more knowledgeable about Raynaud’s, treatments, and warming ideas.

Both: Socially connect with others and become better educated about Raynaud’s.

Other, please share it with us:

Question Title

If you joined such a group, how would you prefer to meet? (please select only one response)

In person

Remote via Zoom or other video platform

Some combination of the above

Question Title

What type of activities would make you more likely to want to attend meetings of such a group? (please check all that apply)

General discussion and information exchange with other sufferers

Demo/show & tell with warming products (heated apparel, warming creams, etc.)

Speaker event with a medical professional

Educational webinar with the national organization

Discussion/demo of self-help techniques with local practitioners/therapists

Work on projects involving advocacy or building awareness for Raynaud’s

Other, please share your thoughts with us:

Question Title

What do you like most about the concept of a local Raynaud’s group?

Question Title

What do you like least about the idea of a local Raynaud’s group?

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Anything else you’d like to share with us or ask us about the concept?

Just a few more questions to help us better understand the opportunity for the concept of local Raynaud’s groups.

Question Title

Is your Raynaud’s the primary or secondary form?

Primary (no autoimmune ailment present)

Secondary (by-product of an autoimmune disease, work-related injury/trauma, excessive smoking, circulatory ailment, drug use or exposure to toxins)

Not sure

If secondary, please list primary ailment(s)

Question Title

Where do you live? Please list City/State or Province/Country

Thanks so much for your input!

If you have experience in working with or managing local self-help groups and would be interested in helping us get new groups started, please share your contact information and previous experience - thank you!

Raynaud's Local Group Feedback Survey

Question Title

Do you or someone in your family suffer from Raynaud’s phenomenon – an exaggerated response to cold temperatures or stress? (Required.)

Question Title

Does the idea of a local Raynaud’s group appeal to you?

Question Title

If we did introduce a Raynaud’s group, what would be your primary reason for joining? (please select only one response)

Question Title

If you joined such a group, how would you prefer to meet? (please select only one response)

Question Title

What type of activities would make you more likely to want to attend meetings of such a group? (please check all that apply)

Question Title

What do you like most about the concept of a local Raynaud’s group?

Question Title

What do you like least about the idea of a local Raynaud’s group?

Question Title

Anything else you’d like to share with us or ask us about the concept?

Question Title

Is your Raynaud’s the primary or secondary form?

Question Title

Where do you live? Please list City/State or Province/Country

Question Title

Name

Question Title

Email

Question Title

Where do you live?

Question Title

Previous Experience:

Raynaud's Local Group Feedback Survey

Question Title

* Do you or someone in your family suffer from Raynaud’s phenomenon – an exaggerated response to cold temperatures or stress? (Required.)

Question Title

* Does the idea of a local Raynaud’s group appeal to you?

Question Title

* If we did introduce a Raynaud’s group, what would be your primary reason for joining? (please select only one response)

Question Title

* If you joined such a group, how would you prefer to meet? (please select only one response)

Question Title

* What type of activities would make you more likely to want to attend meetings of such a group? (please check all that apply)

Question Title

* What do you like most about the concept of a local Raynaud’s group?

Question Title

* What do you like least about the idea of a local Raynaud’s group?

Question Title

* Anything else you’d like to share with us or ask us about the concept?

Question Title

* Is your Raynaud’s the primary or secondary form?

Question Title

* Where do you live? Please list City/State or Province/Country

Question Title

* Name

Question Title

* Email

Question Title

* Where do you live?

Question Title

* Previous Experience:

Do you or someone in your family suffer from Raynaud’s phenomenon – an exaggerated response to cold temperatures or stress? (Required.)

Does the idea of a local Raynaud’s group appeal to you?

If we did introduce a Raynaud’s group, what would be your primary reason for joining? (please select only one response)

If you joined such a group, how would you prefer to meet? (please select only one response)

What type of activities would make you more likely to want to attend meetings of such a group? (please check all that apply)

What do you like most about the concept of a local Raynaud’s group?

What do you like least about the idea of a local Raynaud’s group?

Anything else you’d like to share with us or ask us about the concept?

Is your Raynaud’s the primary or secondary form?

Where do you live? Please list City/State or Province/Country

Name

Email

Where do you live?

Previous Experience: